Histio Resource Directory
The following is a list of resources available in countries outside of the United States.
Contact a Family
firstname.lastname@example.org | www.cafamily.org.uk
This is a national registered charity in the U.K. that provides support and information to families of disabled children, as well as children with rare diseases.
Children's Oncology Camping Association International
(888) 999-2267 | www.cocai.org
Children's Oncology Camping Association International, C.O.C.A., is an international assembly of people providing camping programs for children with cancer
ECD Global Alliance
email@example.com | www.erdheim-chester.org
An organization comprised of ECD patients and their caregivers from around the world. Their mission is to provide support to ECD patients and their loved ones, raise awareness of ECD, and promote research that will help those affected by ECD.
Lab Tests Online
Lab Tests Online has been designed to help you, as a patient or family caregiver, to better understand the many clinical lab tests that are part of routine care as well as diagnosis and treatment of a broad range of conditions and diseases.
Make-a-Wish Foundation International
(800) 965-9474 | www.worldwish.org
This foundation grants the wishes of children with terminal or life-threatening illnesses
(212) 354-8035 | www.projectsunshine.org
Project Sunshine is a nonprofit organization that provides free social, educational and recreational programs to children and families affected by medical challenges. International sites include Canada, China, Israel, Kenya, and Puerto Rico.
Ronald McDonal House Charities
(630) 623-7048 | firstname.lastname@example.org | rmhc.org
Provides low-cost, temporary housing for children and their families while undergoing treatment. Their website includes a listing of international locations.
(913) 642-4646 | www.shadowbuddies.org
Shadow Buddies are condition-specific dolls designed to be a friend "just like me" for seriously ill or medically challenged children. Provide comfort to children, as well as effective method for educating newly-diagnosed children.
International Histio Organizations
The following is a list of Histio Organizations from around the world.
Asociación Argentina de Histocitosis (A.A.H)
email@example.com | www.aah.org.ar
Ciudad Autonoma de Buenos Aires, Argentina
Langerhans Cel Histiocytose – Belgium
02/6466369 | firstname.lastname@example.org | www.lch.be
Histiocytosis Association of Canada
(250) 764-6104 | email@example.com | www.histiocytosis.ca
Kelowna, British Columbia, Canada
L'Association Histiocytose France
01 60 66 93 77 | www.histiocytose.org
Erwachsenen Histiozytose X e.V.
firstname.lastname@example.org | www.ehx-ev.de
German Patient Association for Adult Histiocytosis
Histiozytose Hilfe e.V.
German Patient Association for Histiocytosis
Artemis Society for Histiocytosis - Greece
+45 20 453 | email@example.com | www.histioartemis.gr
firstname.lastname@example.org | www.histioisrael.org
Associazione Italiana Istiocitosi (AIRI)
041-5340721 | email@example.com | www.istiocitosi.org
LCH Patient Association - Japan
Stichting Langerhans Cel Histiocytose
Asociacion Espanola contra la Histiocitosis (ACHE)
Foraldraforeningen for barn med Histiocytos
0733507572 | firstname.lastname@example.org | www.histiocytos.se
Histocytosis Research Trust - United Kingdom
07850 740241 | email@example.com | www.hrtrust.org
Leeds, United Kingdom