Fighting for a Cure

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

Fighting for a Cure

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

What We Do

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

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Fund Research

$7 million in total research funded that is resulting in fewer patient fatalities and more effective treatments.

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Provide Information & Resources

to 19,500+ physicians, patients, families and friends since the organization began in 1986.

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Community Outreach

We connect patients and families through meetings and events, and connect physicians through the Histiocyte Society.

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Support Clinical Trials

We promote new and emerging treatments through the funding of clinical trials and studies.

"I'm so thankful for the Histiocytosis Association! We were so scared and confused when we first got the diagnosis but the information we found here really helped. We were able to find a great doctor and connect with other families with the same disease."

- Rachele, a Histio Mom & Volunteer

Rachele

Featured Videos

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NCCN Releases Guidelines on Histiocytosis

March 1, 2021

The National Comprehensive Cancer Network® (NCCN®) - an alliance of leading cancer centers - published new NCCN Guidelines® on histiocytosis. These clinical practice guidelines provide the latest evidence and expert-consensus for diagnosing and treating the three most common forms of histiocytosis in adults: LCH, ECD, and RDD.
*Although the guidelines are focused on adults, pediatric physicians may find helpful information as well. If seeking care outside of the US, be sure to consult with local healthcare professionals about coverage and availability of treatment methods.

Histio Warriors

Our Impact

$M
in research grants that are resulting in fewer patient fatalities and more effective treatments.
physicians, patients, and families have relied on our resources and information since 1986.
Physicians and researchers gather to share knowledge through the Histiocyte Society.
Physicians are a part of our directory that provides patients access to experienced clinicians, which can result in better outcomes.

Help These Numbers Grow

We cannot make an impact without the help of our Histio Community members like you!