Fighting for a Cure

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

Fighting for a Cure

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

What We Do

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

Icon Research

Fund Research

$7 million in total research funded that is resulting in fewer patient fatalities and more effective treatments.

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Provide Information & Resources

to 19,500+ physicians, patients, families and friends since the organization began in 1986.

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Community Outreach

We connect patients and families through meetings and events, and connect physicians through the Histiocyte Society.

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Support Clinical Trials

We promote new and emerging treatments through the funding of clinical trials and studies.

"I'm so thankful for the Histiocytosis Association! We were so scared and confused when we first got the diagnosis but the information we found here really helped. We were able to find a great doctor and connect with other families with the same disease."

- Rachele, a Histio Mom & Volunteer

Rachele

Featured Videos

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September is Histiocytosis Awareness Month

How will you help raise awareness?

Join us in raising awareness this September all around the world for Histiocytosis Awareness Month!
Get creative! Connect with your local community and help educate people about histiocytosis, how to support vital research, and make an impact in the lives of Histio Warriors and caregivers.
We've compiled a list of suggested activities to get you started!!

Histio Warriors

Our Impact

$M
in research grants that are resulting in fewer patient fatalities and more effective treatments.
physicians, patients, and families have relied on our resources and information since 1986.
Physicians and researchers gather to share knowledge through the Histiocyte Society.
Physicians are a part of our directory that provides patients access to experienced clinicians, which can result in better outcomes.

Help These Numbers Grow

We cannot make an impact without the help of our Histio Community members like you!

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