2024 Pitman Patient and Family Regional Meeting

Meeting Overview

We are excited to host a Patient and Family Regional Meeting, on Saturday, August 24th in Pitman, New Jersey.   

The agenda includes talks covering all histiocytic disorders, information on clinical trials and registries, emotional support, well-being, and diagnosing histiocytosis.  

Open to all impacted by a histiocytic disorder. Medical professionals are welcome to attend all talks. 

You’ll learn directly from leaders in histiocytosis care and research on each of the histiocytic disorders in both children and adults, including: 

  • Langerhans cell histiocytosis (LCH)  
  • Hemophagocytic syndromes (HLH/MAS)  
  • Erdheim-Chester disease (ECD)  
  • Rosai Dorfman disease (RDD)  
  • Xanthogranuloma (JXG/XG) 

It’s FREE to attend and registration for the event is required.
(**Once registration is completed you will receive information and directions to the meeting location). 

Speakers

Here are the experts you'll be learning from:

Scott Canna, MD – Children’s Hospital of Philadelphia 
Dr. Canna is an attending physician in the Division of Rheumatology and Immune Dysregulation Program at Children's Hospital of Philadelphia. Dr. Canna was one of our 2022 research grant recipients for his research on defining and testing the hyperinflammatory immune synapse. 

Gaurav Goyal, MD – University of Alabama at Birmingham
During his fellowship, Dr. Goyal developed a unique focus in histiocytic disorders, including Erdheim-Chester disease, Langerhans cell histiocytosis, and Rosai-Dorfman disease. He conducted multiple studies describing the epidemiology, treatments, and outcomes of patients with histiocytosis and led to the establishment of first of its kind multidisciplinary Histiocytosis Working Group. He has led national and international guidelines on the diagnosis and management of these rare disease entities. He was subsequently recruited to join the Hematology-Oncology division at University of Alabama at Birmingham as an Assistant Professor in 2019.   

Dr. Goyal established the histiocytosis program after moving to UAB and expanded the Histiocytosis Working Group to include members from UAB. He continues to conduct clinical, translational, and outcomes research in histiocytosis at his current position. He has additionally developed special interest in survivorship research with ongoing projects evaluating burden of morbidity and mortality among individuals with histiocytic disorders.   

Nitya Gulati, MD – Weill-Cornell Medicine, New York Presbyterian
Dr. Gulati completed her pediatric hematology/oncology fellowship at the joint program between New York-Presbyterian Hospital/Weill Cornell Medical Center and Memorial Sloan-Kettering Cancer Center. She then went on to complete a year of specialized training in Pediatric lymphoma and Histiocytosis at Baylor College of Medicine/Texas Children’s Hospital Cancer and Hematology Centers in Houston, Texas. Dr. Gulati subsequently joined the lymphoma and histiocytosis team as an Assistant professor and worked there between 2019-2023. 

Dr. Gulati is an active member of the pediatric non-Hodgkin lymphoma committee of the Children’s Oncology Group (COG) and serves as the vice-chair on the upcoming first-of-its-kind trial for relapsed LCH conducted by the COG. She is an active member of the North American Consortium for Histiocytosis (NACHO) and a steering committee member of the INTO-HLH.

Travel Scholarships Available - Limited Quantity 

We are delighted to be able to offer a limited number of travel scholarships to patients/caregivers to help offset the cost of travel to attend the conference in person. 

The travel scholarship is meant for those individuals who would not be able to cover the cost of their travel and participation fully. Assistance is limited and available on a first-come, first-served basis. To be eligible to receive travel assistance, please complete and submit the Travel Scholarship Application no later than Friday, August 9th. Please note that due to limited funds, all requests may not be approved. 

Scholarship decisions will be announced by Friday, August 16th. 

Register Here