Ambassador Interest Form Full Form Preview – Bloomerang 124928 Volunteer / Ambassador Interest Form Contact Information First Name* Last Name* Email* Phone Address Country United States Canada Bermuda United Kingdom Australia France Germany India Japan Mexico South Africa Spain Sweden Switzerland Brazil Argentina New Zealand Ireland Netherlands Italy Norway Denmark Belgium Austria Portugal Singapore Philippines Republic of Korea China Taiwan United Arab Emirates Saudi Arabia Address City State ALAKAZAR CACOCTDE DCFLGAHI IDILINIA KSKYLAME MDMAMIMN MSMOMTNE NVNHNJNM NYNCNDOH OKORPARI SCSDTNTX UTVTVAWA WVWIWY Province ABBCMBNB NLNTNSNU ONPEQCSKYT ZIP Code Postal Code Let’s Get Started! We would like to get to know you before training! What is your availability for a phone call?* After 5pm Afternoon Morning Which histiocytic disorder(s) have directly affected your life? Healthcare Providers, please select any histiocytic disorder(s) you have experience with: Adult Xanthogranuloma (AXG) Erdheim-Chester Disease (ECD) Hemophagocytic Lymphohistiocytosis – Primary – (pHLH) Hemophagocytic Lymphohistiocytosis – Secondary – (sHLH) Histiocytic Sarcoma (HS) I am not directly impacted by any, however, am interested in learning more about histiocytosis. Indeterminate Cell Histiocytosis Interdigitating Cell Sarcoma Juvenile Xanthogranuloma (JXG) Langerhans Cell Histiocytosis (LCH) Langerhans Cell Sarcoma Mixed Histiocytosis (ECD/LCH) Mixed Histiocytosis (ECD/RDD) Mixed Histiocytosis (LCH/RDD) Pulmonary Langerhans Cell Histiocytosis (PLCH) Rosai Dorfman Disease (RDD) Your Relationship to Patient:* Patient Spouse Parent/Guardian Family Member Friend/Care Partner Healthcare Provider Other Age of diagnosis / age of patients you treat* Adult Pediatric Which histiocytic disorder(s) have directly affected your life?* Diabetes Insipidus (DI) Erdheim-Chester Disease (ECD) Hemophagocytic lymphohistiocytosis (HLH) Histiocytic Sarcoma (HS) Langerhans Cell Histiocytosis (LCH) Other histiocytic disorder or related condition Pulmonary Langerhans Cell histiocytosis (PLCH) Rosai-Dorfman Disease (RDD) Xanthogranuloma (JXG/XG) Are you a bereaved family member?* Yes No Your Date of Birth:* Do you have experience with any of the following? (Check all that apply)* Adult Hospital Stays Central Nervous System Involvement Chemotherapy Clinical Trials Genetic Testing (i.e.; B-RAF, PRF1, STX11, etc.) Immunotherapy Long Term Effects Monitoring Only Pediatric Hospital Stays Radiation Steroids Surgical Removal of Disease Transplantation Please list any skills/talents that you possess that will help you serve the Histio Community as an Ambassador (for example: graphic design, public speaking, language translation, coaching, active listening, etc.):* Which areas of ambassadorship are you most interested in? (check all that apply)* Advocacy Education/Awareness Face to Face Community Outreach Events Fundraising Public Presentations Research Social Media/Virtual Networking Social/Emotional Support Do you fluently read/speak/write a language other than English?* No Yes If yes, which language(s): Have you participated in a Histiocytosis Association event in the past?* Yes No If yes, please list the event(s): Briefly describe your interest in volunteering:* Approximate hours per month you can contribute:* 1-2 hours 3-5 hours 6-8 hours 8+ hours Anything else you would like us to know?