Podcast

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Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Ep 089 – Supporting the Next Generation – The Histiocytosis Association’s Student Scholarship Program

March 27, 2026 Comments Off on Ep 089 – Supporting the Next Generation – The Histiocytosis Association’s Student Scholarship Program

In this episode of Beyond the Diagnosis, we sit down with 2024 Histio Student Scholarship recipient Brinda Shukla to hear her powerful journey from a Rosai-Dorfman Disease diagnosis at age…

Ep 88 – From Patient to Advocate – A Youth Voice for Rare Disease Week

February 25, 2026 Comments Off on Ep 88 – From Patient to Advocate – A Youth Voice for Rare Disease Week

On the latest episode of Beyond the Diagnosis, we sit down with Nate — a Histiocytosis Youth Ambassador, high school sophomore, and passionate advocate — who went to Capitol Hill…

Ep 87 – D1 overexpression in Erdheim Chester Disease w/Karen Rech

January 28, 2026 Comments Off on Ep 87 – D1 overexpression in Erdheim Chester Disease w/Karen Rech

In this episode Kathy welcomes Dr. Karen Rech from the Mayo Clinic to discuss her groundbreaking research on Erdheim-Chester Disease (ECD). The conversation delves into the challenges of diagnosing ECD,…

Ep 86 – The 2025 HopeCast!

December 31, 2025 Comments Off on Ep 86 – The 2025 HopeCast!

Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday 2025.  Beyond the Diagnosis • A podcast on Spotify for…

BTD ep 85 – A Season for Gratitude

November 26, 2025 Comments Off on BTD ep 85 – A Season for Gratitude

It’s that time of year where all thoughts shift to gratitude and we wanted to take a moment to express our thankfulness to our histio community for all you do…