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Beyond The Diagnosis
A podcast that goes beyond a histiocytic disorders diagnosis
The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.
Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community. We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.
Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.
Contact Kathy: kathywisniewski@histio.org
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As we get ready to head into Histiocytosis Awareness Month join us as we talk with 2 Histio Ambassadors, Drew Freedman and Nate Milam, about the importance of advocacy and…
Read MoreIn this episode Kathy dives into part 2 of 3 about our research grant program. Today we’ll talk about how grant applications are scored and how the Histiocyte Society’s Scientific…
Read MoreIn this episode we invite the parent’s perspective into the conversation about histiocytosis and hear about a histio mom’s journey with this rare disease and her advice for those currently…
Read MoreIn this episode we highlight an incredible study on caregivers, a very important piece in the puzzle of histiocytosis. Join Kathy as she speaks with Drs. Allison Applebaum and Eli…
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