Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Episode 065- AVP-Deficiency Explained Understanding and Managing a Rare Condition

May 22, 2024 Comments Off on Episode 065- AVP-Deficiency Explained Understanding and Managing a Rare Condition

In this episode Kathy talks with Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living…

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Episode 064 Voices of Dedication-Honoring Our Histio Volunteers

April 24, 2024 Comments Off on Episode 064 Voices of Dedication-Honoring Our Histio Volunteers

In honor of Volunteer Appreciation Month, join us for a special episode dedicated to celebrating the incredible contributions of our devoted volunteers and Ambassadors. Kathy sits down with two of…

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Episode 063 – Heartbeats of Hope: The Histio Caregiver

March 27, 2024 Comments Off on Episode 063 – Heartbeats of Hope: The Histio Caregiver

In this episode we hear about the caregiver experience from Histio Ambassador and mom to a histio warrior, Barb Adams.  She shares an honest and encouraging perspective which will leave…

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BTD Episode 062 – From Adversity to Opportunity

February 28, 2024 Comments Off on BTD Episode 062 – From Adversity to Opportunity

In this episode Kathy is joined by Deanna Fournier and Sydney Martin, 2 histio warriors diagnosed as children, to learn about their inspirational stories of turning their adversity into opportunities…

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Episode 061 – Part 3 of 3 – The Fruits of Our Labor: Joining Together to Fund Research  

January 24, 2024 Comments Off on Episode 061 – Part 3 of 3 – The Fruits of Our Labor: Joining Together to Fund Research  

In Episode 061 of the Beyond the Diagnosis Podcast. Deanna Fournier joins us again, this time with Claudio DiGirolamo, President and Director of the Histiocytosis Association of Canada, to talk…

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