Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure

August 23, 2023 Comments Off on Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure

As we get ready to head into Histiocytosis Awareness Month join us as we talk with 2 Histio Ambassadors, Drew Freedman and Nate Milam, about the importance of advocacy and…

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Episode 53 – Surviving and Thriving – Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal

July 26, 2023 Comments Off on Episode 53 – Surviving and Thriving – Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal
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Episode 048 – Cultivating the Seeds of Research: Understanding the Scoring Process w/ Caroline Hutter

July 11, 2023 Comments Off on Episode 048 – Cultivating the Seeds of Research: Understanding the Scoring Process w/ Caroline Hutter

In this episode Kathy dives into part 2 of 3 about our research grant program.  Today we’ll talk about how grant applications are scored and how the Histiocyte Society’s Scientific…

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Beyond the Diagnosis Episode 42 – Mother Knows Best: An LCH Parent’s Journey w/ Mia Graviano

May 24, 2023 Comments Off on Beyond the Diagnosis Episode 42 – Mother Knows Best: An LCH Parent’s Journey w/ Mia Graviano

In this episode we invite the parent’s perspective into the conversation about histiocytosis and hear about a histio mom’s journey with this rare disease and her advice for those currently…

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Episode 037 Findings from a Rare Cancer Caregiver Study w/Drs. Allison Applebaum and Eli Diamond

April 26, 2023 Comments Off on Episode 037 Findings from a Rare Cancer Caregiver Study w/Drs. Allison Applebaum and Eli Diamond

In this episode we highlight an incredible study on caregivers, a very important piece in the puzzle of histiocytosis.  Join Kathy as she speaks with Drs. Allison Applebaum and Eli…

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