Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Contact Kathy: kathywisniewski@histio.org
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Episode 018 – Beauty From Ashes: Channeling Grief with Michelle Phay

June 23, 2022 Comments Off on Episode 018 – Beauty From Ashes: Channeling Grief with Michelle Phay

In Episode 018, Kathy speaks with Michelle Phay, wife of Dave Phay, who lost his life to HLH in 2018.  Michelle talks about their experience with the disease, how she…

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Episode 017 – History Firsthand – An Account of the Origins of the Histiocytosis Association w/ Jeff Toughill

May 25, 2022 Comments Off on Episode 017 – History Firsthand – An Account of the Origins of the Histiocytosis Association w/ Jeff Toughill

Welcome to Episode 017 of the Beyond the Diagnosis Podcast.  In this episode Kathy has the privilege of speaking with Jeff Toughill, Founder of the Histiocytosis Association and President until…

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Episode 016 – Introducing the Histiocytosis Association Ambassador Program

April 27, 2022 Comments Off on Episode 016 – Introducing the Histiocytosis Association Ambassador Program

In Episode 016 of the Beyond the Diagnosis Podcast, Kathy talks with 2 Association staff members and 2 of our volunteer Ambassadors about the recently launched Histiocytosis Association Ambassador Program.…

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Episode 015 – Erdheim-Chester Disease – Information, Resources and Hope from the Experts

March 23, 2022 Comments Off on Episode 015 – Erdheim-Chester Disease – Information, Resources and Hope from the Experts

In Episode 015 of the Beyond the Diagnosis Podcast, Kathy talks with a panel of 4 experts on ECD – 2 physicians and 2 representatives from the ECD Global Alliance…

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Episode 014 – The Histiocytosis Association Scholarship Program

March 9, 2022 Comments Off on Episode 014 – The Histiocytosis Association Scholarship Program

In Episode 014 of the Beyond the Diagnosis Podcast, Kathy invites back Deanna Fournier, Executive Director of the Histiocytosis Association to talk about the Histiocytosis Association Scholarship Program and how…

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