Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Episode 059 – HopeCast 2023

December 20, 2023 Comments Off on Episode 059 – HopeCast 2023

Come along with us in this episode as we share a replay of our HopeCast, originally broadcast on Giving Tuesday.  Learn all about the accomplishments of 2023 and what’s in…

Read More

Episode 058 – Global Genes Conference: Showing Up and Making an Impact

December 13, 2023 Comments Off on Episode 058 – Global Genes Conference: Showing Up and Making an Impact

Welcome to Episode 058 of the Beyond the Diagnosis Podcast. Join us as we talk with 3 Histio Ambassadors, Melinda Atnip, Ana Valdez and Nate Milam, about their experiences at…

Read More

Beyond the Diagnosis – Episode 56 – Standing Up to ECD with Courage and Hope w/ Barry Atnip

September 27, 2023 Comments Off on Beyond the Diagnosis – Episode 56 – Standing Up to ECD with Courage and Hope w/ Barry Atnip

Welcome to Episode 056 of the Beyond the Diagnosis Podcast. Listen in as Barry shares his courageous journey living with Erdheim-Chester Disease (ECD) and the hope he found through family,…

Read More

Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure

August 23, 2023 Comments Off on Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure

As we get ready to head into Histiocytosis Awareness Month join us as we talk with 2 Histio Ambassadors, Drew Freedman and Nate Milam, about the importance of advocacy and…

Read More

Episode 53 – Surviving and Thriving – Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal

July 26, 2023 Comments Off on Episode 53 – Surviving and Thriving – Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal
Read More