Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Contact Kathy: kathywisniewski@histio.org
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Episode 015 – Erdheim-Chester Disease – Information, Resources and Hope from the Experts

March 23, 2022 Comments Off on Episode 015 – Erdheim-Chester Disease – Information, Resources and Hope from the Experts

In Episode 015 of the Beyond the Diagnosis Podcast, Kathy talks with a panel of 4 experts on ECD – 2 physicians and 2 representatives from the ECD Global Alliance…

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Episode 014 – The Histiocytosis Association Scholarship Program

March 9, 2022 Comments Off on Episode 014 – The Histiocytosis Association Scholarship Program

In Episode 014 of the Beyond the Diagnosis Podcast, Kathy invites back Deanna Fournier, Executive Director of the Histiocytosis Association to talk about the Histiocytosis Association Scholarship Program and how…

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Episode 013 – Hiking Our Way to a Cure

February 24, 2022 Comments Off on Episode 013 – Hiking Our Way to a Cure

In Episode 013 of the Beyond the Diagnosis Podcast, Kathy sits down with Tracy Brown, histio mom and long-time supporter of the Histiocytosis Association.  Tracy, along with her husband Ryan,…

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Episode 012 – Rare Disease Day 2022

January 26, 2022 Comments Off on Episode 012 – Rare Disease Day 2022

In this episode of the Beyond the Diagnosis Podcast, Kathy talks with Debbie Drell, the Director of Membership for the National Office for Rare Disorders or NORD. Learn about Rare…

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Episode 011 – A Look Into the North American Consortium for Histiocytosis

December 21, 2021 Comments Off on Episode 011 – A Look Into the North American Consortium for Histiocytosis

In Episode 011 of the Beyond the Diagnosis Podcast, Kathy sits down with Sara Clyburn, Project Coordinator for NACHO, the North American Consortium for Histiocytosis for a conversation about what…

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