Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Contact Kathy: kathywisniewski@histio.org
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Episode 010 – A Year End Update from the Histiocytosis Association with Executive Director, Deanna Fournier

November 23, 2021 Comments Off on Episode 010 – A Year End Update from the Histiocytosis Association with Executive Director, Deanna Fournier

In Episode 010 of the Beyond the Diagnosis Podcast, Kathy welcomes back Deanna Fournier, Executive Director of the Histiocytosis Association for a conversation about what the Association has accomplished this…

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Episode 009 – Emotional Wellness Month and the Benefits of Yoga w/ Special Guest, Becka Florczyk from Becka Flo Yoga

October 26, 2021 Comments Off on Episode 009 – Emotional Wellness Month and the Benefits of Yoga w/ Special Guest, Becka Florczyk from Becka Flo Yoga

In Episode 009 of the Beyond the Diagnosis Podcast, Kathy talks with Becka Florczyk of Becka Flo Yoga about Emotional Wellness Month and some things we can do to improve…

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Episode 008 – The Ins and Outs of Clinical Trials and Our Research Grant Program – w/ Special Guest, Melissa Hines from St. Jude Children’s Research Hospital

September 22, 2021 Comments Off on Episode 008 – The Ins and Outs of Clinical Trials and Our Research Grant Program – w/ Special Guest, Melissa Hines from St. Jude Children’s Research Hospital

In Episode 008 of the Beyond the Diagnosis Podcast, Kathy has a very interesting conversation with Dr. Melissa Hines from St. Jude Children’s Research Hospital about how clinical trials work…

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Episode 007 – Why Raising Awareness is Critical and the Impact it Can Have

August 24, 2021 Comments Off on Episode 007 – Why Raising Awareness is Critical and the Impact it Can Have

In Episode 007 of the Beyond the Diagnosis Podcast, Kathy sits down with 4 very special guests for a panel discussion about the importance of raising awareness, what 3 different…

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Episode 006 – LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference

July 27, 2021 Comments Off on Episode 006 – LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference

In Episode 006 of the Beyond the Diagnosis Podcast, Kathy sits down with histio patient, Carol Fragoso, as she shares her inspiring story of accepting and overcoming the obstacles that…

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