Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

BTD Episode 062 – From Adversity to Opportunity

February 28, 2024 Comments Off on BTD Episode 062 – From Adversity to Opportunity

In this episode Kathy is joined by Deanna Fournier and Sydney Martin, 2 histio warriors diagnosed as children, to learn about their inspirational stories of turning their adversity into opportunities…

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Episode 061 – Part 3 of 3 – The Fruits of Our Labor: Joining Together to Fund Research  

January 24, 2024 Comments Off on Episode 061 – Part 3 of 3 – The Fruits of Our Labor: Joining Together to Fund Research  

In Episode 061 of the Beyond the Diagnosis Podcast. Deanna Fournier joins us again, this time with Claudio DiGirolamo, President and Director of the Histiocytosis Association of Canada, to talk…

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Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective w/ Dr. Lana Harder

December 27, 2023 Comments Off on Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective w/ Dr. Lana Harder

In Episode 060 of the Beyond the Diagnosis Podcast we’re having a great conversation with a pediatric neuropsychologist that you don’t want to miss!

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Episode 059 – HopeCast 2023

December 20, 2023 Comments Off on Episode 059 – HopeCast 2023

Come along with us in this episode as we share a replay of our HopeCast, originally broadcast on Giving Tuesday.  Learn all about the accomplishments of 2023 and what’s in…

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Episode 058 – Global Genes Conference: Showing Up and Making an Impact

December 13, 2023 Comments Off on Episode 058 – Global Genes Conference: Showing Up and Making an Impact

Welcome to Episode 058 of the Beyond the Diagnosis Podcast. Join us as we talk with 3 Histio Ambassadors, Melinda Atnip, Ana Valdez and Nate Milam, about their experiences at…

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