Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Contact Kathy: kathywisniewski@histio.org
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Episode 005 – Managing Stress in Difficult Times

June 22, 2021 Comments Off on Episode 005 – Managing Stress in Difficult Times

In this episode Kathy puts her knowledge as a health coach to use as she talks about the affects that stress can have on the body and gives practical tips…

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Episode 004 – EveryLife Foundation, the STAT Act, and Rare Disease Week

May 17, 2021 Comments Off on Episode 004 – EveryLife Foundation, the STAT Act, and Rare Disease Week

In this episode Kathy talks with Jamie Sullivan and Shannon von Felden from the EveryLife Foundation about the STAT Act, the upcoming Rare Disease Week and the impact that both…

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Episode 003 – The Histiocyte Society – Hope for the Future

April 21, 2021 Comments Off on Episode 003 – The Histiocyte Society – Hope for the Future

An interview with the President of the HS to learn about the work that they’re doing and the vision for the future.

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Episode 002 – A Glimpse Into the Histiocytosis Association

March 23, 2021 Comments Off on Episode 002 – A Glimpse Into the Histiocytosis Association

In Episode 2 we take a look into the Histiocytosis Association, staff roles, and future vision for the organization with Executive Director, Deanna Fournier.

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Episode 001 – Introduction to Beyond the Diagnosis

March 18, 2021 Comments Off on Episode 001 – Introduction to Beyond the Diagnosis

In this premiere episode of the Beyond the Diagnosis podcast, we introduce you to how we intend to bring you useful and timely information to inspire and encourage you on your journey with histiocytosis.

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