Podcast

Beyond The Diagnosis

A podcast that goes beyond a histiocytic disorders diagnosis

The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.

Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community.  We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.

Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.

Episode 008 – The Ins and Outs of Clinical Trials and Our Research Grant Program – w/ Special Guest, Melissa Hines from St. Jude Children’s Research Hospital

September 22, 2021 Comments Off on Episode 008 – The Ins and Outs of Clinical Trials and Our Research Grant Program – w/ Special Guest, Melissa Hines from St. Jude Children’s Research Hospital

In Episode 008 of the Beyond the Diagnosis Podcast, Kathy has a very interesting conversation with Dr. Melissa Hines from St. Jude Children’s Research Hospital about how clinical trials work…

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Episode 007 – Why Raising Awareness is Critical and the Impact it Can Have

August 24, 2021 Comments Off on Episode 007 – Why Raising Awareness is Critical and the Impact it Can Have

In Episode 007 of the Beyond the Diagnosis Podcast, Kathy sits down with 4 very special guests for a panel discussion about the importance of raising awareness, what 3 different…

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Episode 006 – LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference

July 27, 2021 Comments Off on Episode 006 – LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference

In Episode 006 of the Beyond the Diagnosis Podcast, Kathy sits down with histio patient, Carol Fragoso, as she shares her inspiring story of accepting and overcoming the obstacles that…

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Episode 005 – Managing Stress in Difficult Times

June 22, 2021 Comments Off on Episode 005 – Managing Stress in Difficult Times

In this episode Kathy puts her knowledge as a health coach to use as she talks about the affects that stress can have on the body and gives practical tips…

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Episode 004 – EveryLife Foundation, the STAT Act, and Rare Disease Week

May 17, 2021 Comments Off on Episode 004 – EveryLife Foundation, the STAT Act, and Rare Disease Week

In this episode Kathy talks with Jamie Sullivan and Shannon von Felden from the EveryLife Foundation about the STAT Act, the upcoming Rare Disease Week and the impact that both…

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