Beyond The Diagnosis
A podcast that goes beyond a histiocytic disorders diagnosis
The Beyond the Diagnosis podcast was created to give patients, families, caregivers and other members of the Histio Community the opportunity to have access to another educational resource to help you on your histio journey. This podcast provides an additional platform by which you can consume information while on the go or if you're unable to remain in front of a computer for an extended period of time.
Our vision for the Beyond the Diagnosis podcast is to extend our reach farther and wider and be able to get important, timely, and relevant health and lifestyle information to the Histio Community. We strive to explore topics that are “beyond the diagnosis,” or on the outer edge of what one would expect to hear from a rare disease podcast. We want to answer the lifestyle and overall health questions that you have - and the ones you didn’t know you had.
Tune-in with our Beyond the Diagnosis host, Kathy, and special guests! Listen below or on one of the following popular podcast streaming services: Apple, Spotify, Google, Breaker, Pocket, and RadioPublic.
In this episode Kathy talks with Jamie Sullivan and Shannon von Felden from the EveryLife Foundation about the STAT Act, the upcoming Rare Disease Week and the impact that both…Read More
An interview with the President of the HS to learn about the work that they’re doing and the vision for the future.Read More
In Episode 2 we take a look into the Histiocytosis Association, staff roles, and future vision for the organization with Executive Director, Deanna Fournier.Read More
In this premiere episode of the Beyond the Diagnosis podcast, we introduce you to how we intend to bring you useful and timely information to inspire and encourage you on your journey with histiocytosis.Read More