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Welcome To The Histio Blog!
The histio community is a large support for so many patients and families. That's why our blog is dedicated to showcasing the stories and expertise of those in and around our community.
So far, we have heard from members of the Histiocytosis Association staff, Ambassadors, various families and even healthcare experts who work with the Association.
We hope you can come to rely on this space as a place of comfort and information as you face your own, or a loved one's histio journey.
By Peter Yanefski – Communication and Operations Coordinator When I first started at the Histiocytosis Association in 2022 I only really met with our founder Jeff Toughill by phone or…
By Doris Dahdouh, MSW, LSW, LMSW INHC The holidays are often described as “the most wonderful time of the year.” And for many, they truly are—filled with lights, music, gatherings,…
Each year, the Tuesday after Thanksgiving marks a global celebration of generosity known asGiving Tuesday. What began as a simple idea, to inspire people to do good, has grown into…
Last month, the Histiocytosis Association sent 3 people to the NORD Breakthrough Summit. Histio Ambassadors Tim and Hank, and the Executive Director Jen Silvers. Tim, Hank and Jen all share…
When you train as a journalist, you don’t think the stories you’ll tell will be about yourself (well, except for the Newswriting 101 exercise where you have to pen your…