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Welcome To The Histio Blog!
The histio community is a large support for so many patients and families. That's why our blog is dedicated to showcasing the stories and expertise of those in and around our community.
So far, we have heard from members of the Histiocytosis Association staff, Ambassadors, various families and even healthcare experts who work with the Association.
We hope you can come to rely on this space as a place of comfort and information as you face your own, or a loved one's histio journey.
June marked the close of our Scholarship Program application window, and the start of the application window for the Histiocytosis Association Research Program. In my time on the Board of…
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I hit the road in early May, the wind in my hair as I drove my Mini Cooper down the highway, westbound and headed out for our first in-person events…
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Our fundraising events are incredibly special. While they do seek to bring together the community to raise funds for research and other important programs the Association runs, the emphasis at…
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One of the ways we can propel progress is through advocacy. It seems impossible, to be able to sit with legislatures and policy makers, and to drive forward new processes and…
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The National Organization for Rare Disorders (NORD) is an incredible group of individuals, dedicated to support the needs of patients, families, and organizations impacted by rare diseases and conditions. Last year, we…
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