Welcome To The Histio Blog!

The histio community is a large support for so many patients and families. That's why our blog is dedicated to showcasing the stories and expertise of those in and around our community.

So far, we have heard from members of the Histiocytosis Association staff, Ambassadors, various families and even healthcare experts who work with the Association.

We hope you can come to rely on this space as a place of comfort and information as you face your own, or a loved one's histio journey.

Reaching out to your local community

April 17, 2025 Comments Off on Reaching out to your local community

This past Monday I attended my first Greater Pitman Chamber of Commerce Meeting. Deanna loved attending them when she was more local, and now that I am the most local…

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4 Stories of Advocating for Rare in DC

April 4, 2025 Comments Off on 4 Stories of Advocating for Rare in DC

At the end of February, through the cold, and amidst all the change happening in Washington D.C., several members of our histio community ventured out to participate in Rare Disease…

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From the Desk of Communications Coming Soon

February 28, 2025 Comments Off on From the Desk of Communications Coming Soon

Hey histio community! This is the Strategic Commnications Associate, Peter Yanefski, here. I just wanted to briefly pop into the blog to talk as myself and announce that more of…

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Developing & Updating Clinical Guidelines for Histiocytosis

February 13, 2025 Comments Off on Developing & Updating Clinical Guidelines for Histiocytosis

On January 16th, 2025, I attended an Annual Meeting for the National Comprehensive Cancer Network (NCCN)’s Histiocytic Neoplasms Panel. The physicians on the panel, from across leading cancer centers in…

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2025 and Beyond: Our Hope for the Next Chapter

January 30, 2025 Comments Off on 2025 and Beyond: Our Hope for the Next Chapter

As we at the Association bear through this cold January and get our footing in this new year, we’re looking back on 2024 and using our successes and opportunities for…

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