I am...
I am...
This is now The Histio Blog: A Community Blog. We have had so many great guest writers over the years from our community, so we figured, let's have our community be the main voice of the blog.
One of the blog's main contributors is from Barb Adams, author of the histio children's books: "Someone I Know Has Histio," "Casey and the Messy Clean-up Crew" and "Hold on Henry."
If you have an idea for a blog post or want to write an upcoming post about your own, or a family member's histio experience, please email Peteryanefski@histio.org.
Scroll below to see our newsletter archive.
By Doris François Dahdouh, Peer Support Moderator. As we recognize Mental Health Awareness Month, I find myself thinking about how deeply emotions are woven into the human experience, especially within…
By Barb Adams (Histio Parent) Can you imagine “Histiocytosis: The Musical?” The idea may not be as far-fetched as it seems. In 2018, “Hemophilia: The Musical” had a one-night run…
By Doris Dahdouh MSW, LSW, INHC, LMSWPeer Support Moderator As March comes to an end and we begin to settle more fully into spring, I’ve found myself reflecting on this past winter. I…
2026 Rare Diseases Symposium: Bringing Histio to the TableBy Melinda Atnip – Program and Outreach Coordinator This year marked my third time attending the Rare Diseases Symposium, co-hosted by CHOC…
Reflections from the Raregivers Leadership Conference by Melinda Atnip and Allie McFadden Representing Our Community — and Ourselves As caregivers, care partners, and staff leaders at the Histiocytosis Association, we…
Newsletter Archive
Click on the dropdowns below to search through previous years' newsletters