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This is now The Histio Blog: A Community Blog. We have had so many great guest writers over the years from our community, so we figured, let's have our community be the main voice of the blog.
Our first official community blog post is from Barb Adams, author of the histio children's books: "Someone I Know Has Histio," "Casey and the Messy Clean-up Crew" and "Hold on Henry."
If you have an idea for a blog post or want to write an upcoming post about your own, or a family member's histio experience, please email Peteryanefski@histio.org.
When you train as a journalist, you don’t think the stories you’ll tell will be about yourself (well, except for the Newswriting 101 exercise where you have to pen your…
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By Doris Dahdouh, MSW, LSW, INHC | Histiocytosis Peer Moderator August has been officially designated as National Wellness Month. Did anyone else know that? I’ll admit it—I didn’t! I only…
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By Peter Yanefski – Strategic Communications Associate This year, the Association is encouraging people to design their own awareness posters for Histiocytosis Awareness Month in September. We have opened up…
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By Doris Dahdouh, MSW, LSW, INHC | Histiocytosis Peer Moderator Structure. It’s not a word most people get excited about, but deep down, many of us know how much we…
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At the age of 4 months, Nikolas Kontoyannis was diagnosed with histiocytosis-x (now known as Langerhans cell histiocytosis or LCH). Nikolas’ journey was very uncertain and faced many challenges, including…
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