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This is now The Histio Blog: A Community Blog. We have had so many great guest writers over the years from our community, so we figured, let's have our community be the main voice of the blog.

One of the blog's main contributors is from Barb Adams, author of the histio children's books: "Someone I Know Has Histio," "Casey and the Messy Clean-up Crew" and "Hold on Henry."

If you have an idea for a blog post or want to write an upcoming post about your own, or a family member's histio experience, please email Peteryanefski@histio.org.

Chasing a Vision

January 29, 2026 Comments Off on Chasing a Vision

By Peter Yanefski, Communication and Operations CoordinatorLucas Blomberg was born with clouded vision, he had cataracts from birth. Two years later, his bigger battle began. In late 2018, when Lucas…

Living in Jeff’s Legacy

January 15, 2026 Comments Off on Living in Jeff’s Legacy

By Peter Yanefski – Communication and Operations Coordinator When I first started at the Histiocytosis Association in 2022 I only really met with our founder Jeff Toughill by phone or…

When the Holidays Feel Heavy: Holding Space for Hardship This Season

December 11, 2025 Comments Off on When the Holidays Feel Heavy: Holding Space for Hardship This Season

By Doris Dahdouh, MSW, LSW, LMSW INHC The holidays are often described as “the most wonderful time of the year.” And for many, they truly are—filled with lights, music, gatherings,…

Giving Tuesday: A Day of Generosity, Hope, and Community

November 26, 2025 Comments Off on Giving Tuesday: A Day of Generosity, Hope, and Community

Each year, the Tuesday after Thanksgiving marks a global celebration of generosity known asGiving Tuesday. What began as a simple idea, to inspire people to do good, has grown into…

Celebrating Breakthroughs – Recap of Histio at NORD Breakthrough Summit

November 13, 2025 Comments Off on Celebrating Breakthroughs – Recap of Histio at NORD Breakthrough Summit

Last month, the Histiocytosis Association sent 3 people to the NORD Breakthrough Summit. Histio Ambassadors Tim and Hank, and the Executive Director Jen Silvers. Tim, Hank and Jen all share…