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This is now The Histio Blog: A Community Blog. We have had so many great guest writers over the years from our community, so we figured, let's have our community be the main voice of the blog.
One of the blog's main contributors is from Barb Adams, author of the histio children's books: "Someone I Know Has Histio," "Casey and the Messy Clean-up Crew" and "Hold on Henry."
If you have an idea for a blog post or want to write an upcoming post about your own, or a family member's histio experience, please email Peteryanefski@histio.org.
I cannot believe we are already in 2023! Why does it feel like the years fly by the more we experience? In November, we held our HopeCast, where I shared…
Maire soothed her to sleep like she always had; she sang The Rainbow Song to her. They sang it together as Lils drifted off to sleep. That was the last time Maire heard her daughter’s voice.
You may have heard the exciting news, that on November 1st, 2022, Memorial Sloan Kettering Cancer Center (MSK) announced that the U.S. Food and Drug Administration (FDA) approved the oral MEK inhibitor drug cobimetinib (Cotellic®) for the treatment of adult patients diagnosed with histiocytic neoplasms (HN).
Collaboration noun. – The action of working with someone to produce or create something. A common part of our daily lives, and a critical part of advancing research for histiocytosis…
It’s always a great feeling when we get to bring good news to this blog. There are many challenges that those with histiocytic disorders may face, but there are also…