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This is now The Histio Blog: A Community Blog. We have had so many great guest writers over the years from our community, so we figured, let's have our community be the main voice of the blog.

One of the blog's main contributors is from Barb Adams, author of the histio children's books: "Someone I Know Has Histio," "Casey and the Messy Clean-up Crew" and "Hold on Henry."

If you have an idea for a blog post or want to write an upcoming post about your own, or a family member's histio experience, please email Peteryanefski@histio.org.

Giving Tuesday: A Day of Generosity, Hope, and Community

November 26, 2025 Comments Off on Giving Tuesday: A Day of Generosity, Hope, and Community

Each year, the Tuesday after Thanksgiving marks a global celebration of generosity known asGiving Tuesday. What began as a simple idea, to inspire people to do good, has grown into…

Celebrating Breakthroughs – Recap of Histio at NORD Breakthrough Summit

November 13, 2025 Comments Off on Celebrating Breakthroughs – Recap of Histio at NORD Breakthrough Summit

Last month, the Histiocytosis Association sent 3 people to the NORD Breakthrough Summit. Histio Ambassadors Tim and Hank, and the Executive Director Jen Silvers. Tim, Hank and Jen all share…

Barbara Adams: Telling Her Story and Yours

October 30, 2025 Comments Off on Barbara Adams: Telling Her Story and Yours

When you train as a journalist, you don’t think the stories you’ll tell will be about yourself (well, except for the Newswriting 101 exercise where you have to pen your…

What Does It Really Mean to Be Well?

August 7, 2025 Comments Off on What Does It Really Mean to Be Well?

By Doris Dahdouh, MSW, LSW, INHC | Histiocytosis Peer Moderator August has been officially designated as National Wellness Month. Did anyone else know that? I’ll admit it—I didn’t! I only…

Designing Your Own Awareness Poster – From the Desk of Communications

July 24, 2025 Comments Off on Designing Your Own Awareness Poster – From the Desk of Communications

By Peter Yanefski – Strategic Communications Associate This year, the Association is encouraging people to design their own awareness posters for Histiocytosis Awareness Month in September. We have opened up…