This is now The Histio Blog: A Community Blog. We have had so many great guest writers over the years from our community, so we figured, let's have our community be the main voice of the blog.

Our first official community blog post is going to be from Barb Adams, author of the histio children's books: "Someone I Know Has Histio," "Casey and the Messy Clean-up Crew" and "Hold on Henry."

If you have an idea for a blog post or want to write an upcoming post about your own, or a family member's histio experience, please email Peteryanefski@histio.org.

Reaching out to your local community

April 17, 2025 Comments Off on Reaching out to your local community

This past Monday I attended my first Greater Pitman Chamber of Commerce Meeting. Deanna loved attending them when she was more local, and now that I am the most local…

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4 Stories of Advocating for Rare in DC

April 4, 2025 Comments Off on 4 Stories of Advocating for Rare in DC

At the end of February, through the cold, and amidst all the change happening in Washington D.C., several members of our histio community ventured out to participate in Rare Disease…

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From the Desk of Communications Coming Soon

February 28, 2025 Comments Off on From the Desk of Communications Coming Soon

Hey histio community! This is the Strategic Commnications Associate, Peter Yanefski, here. I just wanted to briefly pop into the blog to talk as myself and announce that more of…

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Developing & Updating Clinical Guidelines for Histiocytosis

February 13, 2025 Comments Off on Developing & Updating Clinical Guidelines for Histiocytosis

On January 16th, 2025, I attended an Annual Meeting for the National Comprehensive Cancer Network (NCCN)’s Histiocytic Neoplasms Panel. The physicians on the panel, from across leading cancer centers in…

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2025 and Beyond: Our Hope for the Next Chapter

January 30, 2025 Comments Off on 2025 and Beyond: Our Hope for the Next Chapter

As we at the Association bear through this cold January and get our footing in this new year, we’re looking back on 2024 and using our successes and opportunities for…

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