Executive Director Letters
This week, we have a comforting post guest written by an old friend of mine, Doris Dahdouh about self-care through a diagnosis, and will be back soon to share about…
Read MoreThis past Monday I attended my first Greater Pitman Chamber of Commerce Meeting. Deanna loved attending them when she was more local, and now that I am the most local…
Read MoreAt the end of February, through the cold, and amidst all the change happening in Washington D.C., several members of our histio community ventured out to participate in Rare Disease…
Read MoreHey histio community! This is the Strategic Commnications Associate, Peter Yanefski, here. I just wanted to briefly pop into the blog to talk as myself and announce that more of…
Read MoreOn January 16th, 2025, I attended an Annual Meeting for the National Comprehensive Cancer Network (NCCN)’s Histiocytic Neoplasms Panel. The physicians on the panel, from across leading cancer centers in…
Read MoreAs we at the Association bear through this cold January and get our footing in this new year, we’re looking back on 2024 and using our successes and opportunities for…
Read MoreIn a blog post in October, we featured the abridged conversation between me and two Social Security experts Sandra Lamb and Jane Johnson, from the recent Beyond the Diagnosis podcast…
Read MoreToday I want to share about a topic that isn’t discussed nearly as much as it’s negative counterpart. I want to talk about Post-Traumatic Growth. Post-Traumatic Growth is a mental…
Read MoreHi everyone! We hope you enjoyed all of the information we shared during Awareness Month!Recently, we shared that compassionate allowances for SSDI benefit enrollment were expanded for those with histiocytic…
Read MoreThis week, we are pleased to have team from the INTO-HLH Registry as guests, to speak about the registry, its purpose, and its progress. The INTO-HLH RegistryThe Insight into the…
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