Executive Director Letters
This week, we have a comforting post guest written by an old friend of mine, Doris Dahdouh about self-care through a diagnosis, and will be back soon to share about…
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This past Monday I attended my first Greater Pitman Chamber of Commerce Meeting. Deanna loved attending them when she was more local, and now that I am the most local…
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At the end of February, through the cold, and amidst all the change happening in Washington D.C., several members of our histio community ventured out to participate in Rare Disease…
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Hey histio community! This is the Strategic Commnications Associate, Peter Yanefski, here. I just wanted to briefly pop into the blog to talk as myself and announce that more of…
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On January 16th, 2025, I attended an Annual Meeting for the National Comprehensive Cancer Network (NCCN)’s Histiocytic Neoplasms Panel. The physicians on the panel, from across leading cancer centers in…
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As we at the Association bear through this cold January and get our footing in this new year, we’re looking back on 2024 and using our successes and opportunities for…
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In a blog post in October, we featured the abridged conversation between me and two Social Security experts Sandra Lamb and Jane Johnson, from the recent Beyond the Diagnosis podcast…
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Today I want to share about a topic that isn’t discussed nearly as much as it’s negative counterpart. I want to talk about Post-Traumatic Growth. Post-Traumatic Growth is a mental…
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Hi everyone! We hope you enjoyed all of the information we shared during Awareness Month!Recently, we shared that compassionate allowances for SSDI benefit enrollment were expanded for those with histiocytic…
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This week, we are pleased to have team from the INTO-HLH Registry as guests, to speak about the registry, its purpose, and its progress. The INTO-HLH RegistryThe Insight into the…
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