Executive Director Letters
During the last week of May, the World Orphan Drug Congress (WODC) had its annual meeting in Washington, D.C. Last year, I was able to attend this event for the…
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Last year I talked to you about Rare Across America with two former participants, Drew Freedman and Leisa Greathouse. Now, we want to invite you to find something in rare…
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Here at the Histiocytosis Association we ended April strong and kicked the month of May off with a bang! Between all of us, we have attended three conferences in the…
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At the Association, we strive to not just be a source of research and resources for our community, but to be a welcoming community in and of ourselves. As part…
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This is an exciting time for the Association and its connections to the college and medical communities!! The Histio Student Scholarship application window just closed, and the next Research Grant…
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With histiocytic disorders being rare, awareness to not only the medical community but also the government level of drug development, research, and health is important for the Histiocytosis Association team.…
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Since its inception in 2019, the histio scholarship program has supported 11 histio warriors and 3 histio family members in their pursuit of a college degree. This is made possible through…
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“Look for horses, not zebras.” That’s what doctors often teach in medical school to those learning how to diagnose illnesses. Looking for the rare disease comes later. First, they are…
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Our History of Research Funding At the very heart of the Histiocytosis Association is the steadfast commitment to finding a cure for histiocytic disorders. The Histiocytosis Association Research Grant Program…
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Slightly over a year ago, our former Communications Director started our first Histio Night at the Flyers in early 2022. Last week, we had the second annual Histio Night at…
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