Histio Blog
Reflections from the Raregivers Leadership Conference by Melinda Atnip and Allie McFadden Representing Our Community — and Ourselves As caregivers, care partners, and staff leaders at the Histiocytosis Association, we…
By Peter YanefskiCommunication and Operations Coordinator When diagnosed with a disease, with a cough or a sneeze,People can hear it, or see it on your sleeve. When diagnosed with something…
By Peter Yanefski, Communication and Operations Coordinator Lucas Blomberg was born with clouded vision, he had cataracts from birth. Two years later, his bigger battle began. In late 2018, when…
By Peter Yanefski – Communication and Operations Coordinator When I first started at the Histiocytosis Association in 2022 I only really met with our founder Jeff Toughill by phone or…
By Doris Dahdouh, MSW, LSW, LMSW INHC The holidays are often described as “the most wonderful time of the year.” And for many, they truly are—filled with lights, music, gatherings,…
Each year, the Tuesday after Thanksgiving marks a global celebration of generosity known asGiving Tuesday. What began as a simple idea, to inspire people to do good, has grown into…
Last month, the Histiocytosis Association sent 3 people to the NORD Breakthrough Summit. Histio Ambassadors Tim and Hank, and the Executive Director Jen Silvers. Tim, Hank and Jen all share…
When you train as a journalist, you don’t think the stories you’ll tell will be about yourself (well, except for the Newswriting 101 exercise where you have to pen your…
By Doris Dahdouh, MSW, LSW, INHC | Histiocytosis Peer Moderator August has been officially designated as National Wellness Month. Did anyone else know that? I’ll admit it—I didn’t! I only…
By Peter Yanefski – Strategic Communications Associate This year, the Association is encouraging people to design their own awareness posters for Histiocytosis Awareness Month in September. We have opened up…