Histio Blog

Barbara Adams: Telling Her Story and Yours

October 30, 2025

When you train as a journalist, you don’t think the stories you’ll tell will be about yourself (well, except for the Newswriting 101 exercise where you have to pen your…

What Does It Really Mean to Be Well?

August 7, 2025

By Doris Dahdouh, MSW, LSW, INHC | Histiocytosis Peer Moderator August has been officially designated as National Wellness Month. Did anyone else know that? I’ll admit it—I didn’t! I only…

Designing Your Own Awareness Poster – From the Desk of Communications

July 24, 2025

By Peter Yanefski – Strategic Communications Associate This year, the Association is encouraging people to design their own awareness posters for Histiocytosis Awareness Month in September. We have opened up…

Grounded in the Chaos: Navigating Summer with Histiocytosis

July 10, 2025

By Doris Dahdouh, MSW, LSW, INHC | Histiocytosis Peer Moderator Structure. It’s not a word most people get excited about, but deep down, many of us know how much we…

The 33rd Annual Nikolas Symposium: A Pathway to a Cure 

June 18, 2025

At the age of 4 months, Nikolas Kontoyannis was diagnosed with histiocytosis-x (now known as Langerhans cell histiocytosis or LCH). Nikolas’ journey was very uncertain and faced many challenges, including…

Creating your own logo for an event

June 5, 2025

By Peter Yanefski, Strategic Communications Associate Are you hosting a D-I-Y fundraiser this summer as part of Summer FUNdraising? If so you will need a catchy name and logo. While…

Mental Health Awareness & Rare Disease Questions

May 29, 2025

Answered by Doris Dahdouh, Licensed Social Worker and Integrative Nutrition Health Coach In honor of Mental Health Awareness Month this May, I sat down with the Executive Director, Deanna Fournier,…

How to Prioritize Self-Care When Your Loved One’s Diagnosis Gets Overwhelming

May 23, 2025

You are still the same. Your loved one is still the same.
But—will your loved one change? Is your relationship, as you know it, about to shift?

Why Have We Endured the Elements these Past 16 Years?

May 8, 2025

Today we wanted to hear from our Board of Trustees Chairwoman, Tracy Brown, about the Histio Hike Shenandoah, one of the longest running volunteer-led events we have (16 years strong!).…

How to Prioritize Self-Care When Your Diagnosis Gets Overwhelming

April 24, 2025

This week, we have a comforting post guest written by an old friend of mine, Doris Dahdouh about self-care through a diagnosis, and will be back soon to share about…