Beyond The Diagnosis Podcast

Beyond the Diagnosis – Episode 56 – Standing Up to ECD with Courage and Hope w/ Barry Atnip

September 27, 2023

Welcome to Episode 056 of the Beyond the Diagnosis Podcast. Listen in as Barry shares his courageous journey living with Erdheim-Chester Disease (ECD) and the hope he found through family,…

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Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure

August 23, 2023

As we get ready to head into Histiocytosis Awareness Month join us as we talk with 2 Histio Ambassadors, Drew Freedman and Nate Milam, about the importance of advocacy and…

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Episode 53 – Surviving and Thriving – Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal

July 26, 2023
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Episode 048 – Cultivating the Seeds of Research: Understanding the Scoring Process w/ Caroline Hutter

July 11, 2023

In this episode Kathy dives into part 2 of 3 about our research grant program.  Today we’ll talk about how grant applications are scored and how the Histiocyte Society’s Scientific…

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Beyond the Diagnosis Episode 42 – Mother Knows Best: An LCH Parent’s Journey w/ Mia Graviano

May 24, 2023

In this episode we invite the parent’s perspective into the conversation about histiocytosis and hear about a histio mom’s journey with this rare disease and her advice for those currently…

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Episode 037 Findings from a Rare Cancer Caregiver Study w/Drs. Allison Applebaum and Eli Diamond

April 26, 2023

In this episode we highlight an incredible study on caregivers, a very important piece in the puzzle of histiocytosis.  Join Kathy as she speaks with Drs. Allison Applebaum and Eli…

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Ep 031- The Best of the Beyond the Diagnosis Podcast: 2nd Anniversary Countdown Special

March 22, 2023

On this 2nd anniversary of the podcast, we count down the top 10 most listened to episodes!

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Ep 027 – Seeds of Funding – The Foundation of the Research Grants Program w/ Allie McFadden

February 22, 2023

The first in a 3-part series, in this episode Kathy speaks with Allie McFadden, Association Fundraising Events Coordinator as we introduce you to our research grant process, starting at the…

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Ep 026 – Education in the Histiocyte Society: What, Why and How w/ Dr. Michael Henry

January 25, 2023

In this episode, Dr. Michael Henry, Chair of the Histiocyte Society Education Committee, shares with us how education is at the forefront of the Society from pilot programs to abstract…

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Episode 025 – The 2022 HopeCast and Year End Update

December 28, 2022

On episode 25 of the Beyond the Diagnosis Podcast Kathy shares a replay of our HopeCast, originally broadcast on Giving Tuesday.  Learn all about the accomplishments of 2022 and what’s…

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