Beyond The Diagnosis Podcast

Episode 077 – MEK Inhibitors in ECD –MEK Inhibitors in ECD

March 26, 2025

In this episode, we’re chatting with Drs. Goyal, Abeykoon, and Acosta-Medina about their study on MEK inhibitors and what it means for patients. Plus, we’ll dive into how genetic mutations…

Read More

Episode 076 – Meet the Team: Staff Highlight Series with Erica, Our Database Guru

February 26, 2025

In this episode we’re bringing you the third in our “Meet the Team,” series where we introduce you to the dedicated individuals working behind the scenes of the Histiocytosis Association.…

Read More

Episode 075 – The 2024 Hopecast Part 3 – Research

January 22, 2025

In this episode we dive into part 3 of the 2024 HopeCast replay, originally broadcast live on Giving Tuesday in December 2024.  This episode is focused on the third and…

Read More

Episode 074 – The 2024 Hopecast Part 2 – Support

January 17, 2025

In this episode we share part 2 of a replay of the 2024 HopeCast, originally broadcast live on Giving Tuesday in December 2024.  This episode is focused on the second…

Read More

BTD Episode 073 – 2024 Hopecast – Awareness

December 26, 2024

Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday 2024.  Filled with stories, accomplishments and a look ahead, this…

Read More

Episode 072 – Recap of 40th Annual Meeting

November 27, 2024

In this episode we’re learning about the most recent Histiocyte Society Annual Meeting right from the horse’s mouth! Join us as Histiocyte Society President, Dr. Kim Nichols, shares all of…

Read More

Episode 071 – Meet the Team: Behind the Scenes with Danielle, Our Financial Extraordinaire

October 23, 2024

In this episode we’re bringing you the second in our “Meet the Team,” series where we introduce you to the dedicated individuals working behind the scenes of the Histiocytosis Association.…

Read More

Ep 70 – Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis.

September 25, 2024

In this episode, Deanna Fournier guest hosts and interviews Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders.…

Read More

Episode 069 – Navigating Social Security & Disability Benefits for Adults: Compassionate Allowance Expansion for Histiocytosis

September 18, 2024

In this episode, Deanna Fournier guest hosts interviews with Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders,…

Read More

068 – Meet the Team: Behind the Scenes with Peter, Our Strategic Communications Maestro

August 28, 2024

In this episode we’re excited to kick off our new series, “Meet the Team,” where we introduce you to the dedicated individuals working behind the scenes. Our first guest is…

Read More