Beyond The Diagnosis Podcast

Ep 089 – Supporting the Next Generation – The Histiocytosis Association’s Student Scholarship Program

March 27, 2026

In this episode of Beyond the Diagnosis, we sit down with 2024 Histio Student Scholarship recipient Brinda Shukla to hear her powerful journey from a Rosai-Dorfman Disease diagnosis at age…

Ep 88 – From Patient to Advocate – A Youth Voice for Rare Disease Week

February 25, 2026

On the latest episode of Beyond the Diagnosis, we sit down with Nate — a Histiocytosis Youth Ambassador, high school sophomore, and passionate advocate — who went to Capitol Hill…

Ep 87 – D1 overexpression in Erdheim Chester Disease w/Karen Rech

January 28, 2026

In this episode Kathy welcomes Dr. Karen Rech from the Mayo Clinic to discuss her groundbreaking research on Erdheim-Chester Disease (ECD). The conversation delves into the challenges of diagnosing ECD,…

Ep 86 – The 2025 HopeCast!

December 31, 2025

Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday 2025.  Beyond the Diagnosis • A podcast on Spotify for…

BTD ep 85 – A Season for Gratitude

November 26, 2025

It’s that time of year where all thoughts shift to gratitude and we wanted to take a moment to express our thankfulness to our histio community for all you do…

Ep 84 – Meet the New Histiocyte Society President, Vasanta Nanduri

October 22, 2025

In this episode we’re introducing you to the brand-new President of the Histiocyte Society, Dr. Vasanta Nanduri.  We talk about how she got involved in medicine, her history with the…

Ep 83 – Staff Highlight – Meet the New Executive Director, Jen Silvers

September 25, 2025

In this episode we’re introducing you to the Histiocytosis Association’s brand new Executive Director, Jen Silvers, as we continue on in our staff highlight series! Listen in as we learn…

EP 82 – Continuing Medical Education and the Patient Voice

August 27, 2025

In this episode, we’re exploring the personal journeys of patients and families navigating the complex world of HLH and delving into the transformative power of collaboration between organizations dedicated to…

Episode 081 – Meet the Team: Behind the Scenes with Kathy, the Histiocyte Society Secretariat and More!

July 23, 2025

In this conversation, we turn the spotlight on the voice behind Beyond the Diagnosis. With nearly 17 years at the Histiocytosis Association, Kathy Wisniewski discusses her multifaceted role, including managing…

Episode 80 – Histio Patient and Family Summit – Your Guide to this Exciting Event

June 25, 2025

In this conversation, we are discussing the upcoming Histio Patient and Family Summit, highlighting its significance in fostering education, connection, and support within the histiocytosis community. Join us as we…