Beyond The Diagnosis Podcast

Episode 80 – Histio Patient and Family Summit – Your Guide to this Exciting Event

June 25, 2025

In this conversation, we are discussing the upcoming Histio Patient and Family Summit, highlighting its significance in fostering education, connection, and support within the histiocytosis community. Join us as we…

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Episode 079: Approach to the Patient: From Endocrinopathy to the Diagnosis of a Histiocytic Disorder

May 28, 2025

Drawing from a recent webinar, Drs. Polyzois Makris and Gaurav Goyal join us to explore their research and the critical role endocrinologists play in recognizing symptoms early, guiding diagnosis, and…

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Episode 078 – From Misdiagnosis to Mission – One Patient’s Journey with Rare Disease

April 23, 2025

In this episode, Ambassador Hank Heren shares his courageous journey from being misdiagnosed, to finding his purpose in life to help others affected by histiocytosis in the most practical of…

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Episode 077 – MEK Inhibitors in ECD –MEK Inhibitors in ECD

March 26, 2025

In this episode, we’re chatting with Drs. Goyal, Abeykoon, and Acosta-Medina about their study on MEK inhibitors and what it means for patients. Plus, we’ll dive into how genetic mutations…

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Episode 076 – Meet the Team: Staff Highlight Series with Erica, Our Database Guru

February 26, 2025

In this episode we’re bringing you the third in our “Meet the Team,” series where we introduce you to the dedicated individuals working behind the scenes of the Histiocytosis Association.…

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Episode 075 – The 2024 Hopecast Part 3 – Research

January 22, 2025

In this episode we dive into part 3 of the 2024 HopeCast replay, originally broadcast live on Giving Tuesday in December 2024.  This episode is focused on the third and…

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Episode 074 – The 2024 Hopecast Part 2 – Support

January 17, 2025

In this episode we share part 2 of a replay of the 2024 HopeCast, originally broadcast live on Giving Tuesday in December 2024.  This episode is focused on the second…

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BTD Episode 073 – 2024 Hopecast – Awareness

December 26, 2024

Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday 2024.  Filled with stories, accomplishments and a look ahead, this…

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Episode 072 – Recap of 40th Annual Meeting

November 27, 2024

In this episode we’re learning about the most recent Histiocyte Society Annual Meeting right from the horse’s mouth! Join us as Histiocyte Society President, Dr. Kim Nichols, shares all of…

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Episode 071 – Meet the Team: Behind the Scenes with Danielle, Our Financial Extraordinaire

October 23, 2024

In this episode we’re bringing you the second in our “Meet the Team,” series where we introduce you to the dedicated individuals working behind the scenes of the Histiocytosis Association.…

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