Beyond The Diagnosis Podcast

Episode 065- AVP-Deficiency Explained Understanding and Managing a Rare Condition

May 22, 2024

In this episode Kathy talks with Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living…

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Episode 064 Voices of Dedication-Honoring Our Histio Volunteers

April 24, 2024

In honor of Volunteer Appreciation Month, join us for a special episode dedicated to celebrating the incredible contributions of our devoted volunteers and Ambassadors. Kathy sits down with two of…

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Episode 063 – Heartbeats of Hope: The Histio Caregiver

March 27, 2024

In this episode we hear about the caregiver experience from Histio Ambassador and mom to a histio warrior, Barb Adams.  She shares an honest and encouraging perspective which will leave…

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BTD Episode 062 – From Adversity to Opportunity

February 28, 2024

In this episode Kathy is joined by Deanna Fournier and Sydney Martin, 2 histio warriors diagnosed as children, to learn about their inspirational stories of turning their adversity into opportunities…

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Episode 061 – Part 3 of 3 – The Fruits of Our Labor: Joining Together to Fund Research  

January 24, 2024

In Episode 061 of the Beyond the Diagnosis Podcast. Deanna Fournier joins us again, this time with Claudio DiGirolamo, President and Director of the Histiocytosis Association of Canada, to talk…

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Episode 060 – Navigating Histiocytosis from a Neuropsychological Perspective w/ Dr. Lana Harder

December 27, 2023

In Episode 060 of the Beyond the Diagnosis Podcast we’re having a great conversation with a pediatric neuropsychologist that you don’t want to miss!

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Episode 059 – HopeCast 2023

December 20, 2023

Come along with us in this episode as we share a replay of our HopeCast, originally broadcast on Giving Tuesday.  Learn all about the accomplishments of 2023 and what’s in…

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Episode 058 – Global Genes Conference: Showing Up and Making an Impact

December 13, 2023

Welcome to Episode 058 of the Beyond the Diagnosis Podcast. Join us as we talk with 3 Histio Ambassadors, Melinda Atnip, Ana Valdez and Nate Milam, about their experiences at…

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Beyond the Diagnosis – Episode 56 – Standing Up to ECD with Courage and Hope w/ Barry Atnip

September 27, 2023

Welcome to Episode 056 of the Beyond the Diagnosis Podcast. Listen in as Barry shares his courageous journey living with Erdheim-Chester Disease (ECD) and the hope he found through family,…

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Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure

August 23, 2023

As we get ready to head into Histiocytosis Awareness Month join us as we talk with 2 Histio Ambassadors, Drew Freedman and Nate Milam, about the importance of advocacy and…

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