Beyond The Diagnosis Podcast

BTD Episode 073 – 2024 Hopecast – Awareness

December 26, 2024

Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday 2024.  Filled with stories, accomplishments and a look ahead, this…

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Episode 072 – Recap of 40th Annual Meeting

November 27, 2024

In this episode we’re learning about the most recent Histiocyte Society Annual Meeting right from the horse’s mouth! Join us as Histiocyte Society President, Dr. Kim Nichols, shares all of…

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Episode 071 – Meet the Team: Behind the Scenes with Danielle, Our Financial Extraordinaire

October 23, 2024

In this episode we’re bringing you the second in our “Meet the Team,” series where we introduce you to the dedicated individuals working behind the scenes of the Histiocytosis Association.…

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Ep 70 – Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis.

September 25, 2024

In this episode, Deanna Fournier guest hosts and interviews Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders.…

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Episode 069 – Navigating Social Security & Disability Benefits for Adults: Compassionate Allowance Expansion for Histiocytosis

September 18, 2024

In this episode, Deanna Fournier guest hosts interviews with Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders,…

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068 – Meet the Team: Behind the Scenes with Peter, Our Strategic Communications Maestro

August 28, 2024

In this episode we’re excited to kick off our new series, “Meet the Team,” where we introduce you to the dedicated individuals working behind the scenes. Our first guest is…

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Episode 067 – Fostering the Next Generation: Young Investigator Initiatives Within the Histiocyte Society

July 24, 2024

In this episode we’re diving into the innovative Young Investigator initiatives within the Histiocyte Society, spotlighting the newly formed Young Investigator and Social Media committees. We explore their goals and…

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Episode 066 – Working Through Grief – Together

June 26, 2024

In this episode Kathy dives into the complex emotions surrounding grief in patients and families dealing with histiocytosis. We’ll talk about the different types of grief, the stages of healing,…

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Episode 065- AVP-Deficiency Explained Understanding and Managing a Rare Condition

May 22, 2024

In this episode Kathy talks with Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living…

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Episode 064 Voices of Dedication-Honoring Our Histio Volunteers

April 24, 2024

In honor of Volunteer Appreciation Month, join us for a special episode dedicated to celebrating the incredible contributions of our devoted volunteers and Ambassadors. Kathy sits down with two of…

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