Beyond The Diagnosis Podcast

Episode 018 – Beauty From Ashes: Channeling Grief with Michelle Phay

June 23, 2022

In Episode 018, Kathy speaks with Michelle Phay, wife of Dave Phay, who lost his life to HLH in 2018.  Michelle talks about their experience with the disease, how she…

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Episode 017 – History Firsthand – An Account of the Origins of the Histiocytosis Association w/ Jeff Toughill

May 25, 2022

Welcome to Episode 017 of the Beyond the Diagnosis Podcast.  In this episode Kathy has the privilege of speaking with Jeff Toughill, Founder of the Histiocytosis Association and President until…

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Episode 016 – Introducing the Histiocytosis Association Ambassador Program

April 27, 2022

In Episode 016 of the Beyond the Diagnosis Podcast, Kathy talks with 2 Association staff members and 2 of our volunteer Ambassadors about the recently launched Histiocytosis Association Ambassador Program.…

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Episode 015 – Erdheim-Chester Disease – Information, Resources and Hope from the Experts

March 23, 2022

In Episode 015 of the Beyond the Diagnosis Podcast, Kathy talks with a panel of 4 experts on ECD – 2 physicians and 2 representatives from the ECD Global Alliance…

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Episode 014 – The Histiocytosis Association Scholarship Program

March 9, 2022

In Episode 014 of the Beyond the Diagnosis Podcast, Kathy invites back Deanna Fournier, Executive Director of the Histiocytosis Association to talk about the Histiocytosis Association Scholarship Program and how…

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Episode 013 – Hiking Our Way to a Cure

February 24, 2022

In Episode 013 of the Beyond the Diagnosis Podcast, Kathy sits down with Tracy Brown, histio mom and long-time supporter of the Histiocytosis Association.  Tracy, along with her husband Ryan,…

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Episode 012 – Rare Disease Day 2022

January 26, 2022

In this episode of the Beyond the Diagnosis Podcast, Kathy talks with Debbie Drell, the Director of Membership for the National Office for Rare Disorders or NORD. Learn about Rare…

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Episode 011 – A Look Into the North American Consortium for Histiocytosis

December 21, 2021

In Episode 011 of the Beyond the Diagnosis Podcast, Kathy sits down with Sara Clyburn, Project Coordinator for NACHO, the North American Consortium for Histiocytosis for a conversation about what…

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Episode 010 – A Year End Update from the Histiocytosis Association with Executive Director, Deanna Fournier

November 23, 2021

In Episode 010 of the Beyond the Diagnosis Podcast, Kathy welcomes back Deanna Fournier, Executive Director of the Histiocytosis Association for a conversation about what the Association has accomplished this…

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Episode 009 – Emotional Wellness Month and the Benefits of Yoga w/ Special Guest, Becka Florczyk from Becka Flo Yoga

October 26, 2021

In Episode 009 of the Beyond the Diagnosis Podcast, Kathy talks with Becka Florczyk of Becka Flo Yoga about Emotional Wellness Month and some things we can do to improve…

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