Beyond The Diagnosis Podcast
In this episode we’re diving into the innovative Young Investigator initiatives within the Histiocyte Society, spotlighting the newly formed Young Investigator and Social Media committees. We explore their goals and…
Read MoreIn this episode Kathy dives into the complex emotions surrounding grief in patients and families dealing with histiocytosis. We’ll talk about the different types of grief, the stages of healing,…
Read MoreIn this episode Kathy talks with Pat Gildroy, lead administrator of the Facebook Group, “Got Arginine VasoPressin Deficiency?” about the resources, symptoms, tests, and the patient experience for those living…
Read MoreIn honor of Volunteer Appreciation Month, join us for a special episode dedicated to celebrating the incredible contributions of our devoted volunteers and Ambassadors. Kathy sits down with two of…
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In this episode we hear about the caregiver experience from Histio Ambassador and mom to a histio warrior, Barb Adams. She shares an honest and encouraging perspective which will leave…
Read MoreIn this episode Kathy is joined by Deanna Fournier and Sydney Martin, 2 histio warriors diagnosed as children, to learn about their inspirational stories of turning their adversity into opportunities…
Read MoreIn Episode 061 of the Beyond the Diagnosis Podcast. Deanna Fournier joins us again, this time with Claudio DiGirolamo, President and Director of the Histiocytosis Association of Canada, to talk…
Read MoreIn Episode 060 of the Beyond the Diagnosis Podcast we’re having a great conversation with a pediatric neuropsychologist that you don’t want to miss!
Read MoreCome along with us in this episode as we share a replay of our HopeCast, originally broadcast on Giving Tuesday. Learn all about the accomplishments of 2023 and what’s in…
Read MoreWelcome to Episode 058 of the Beyond the Diagnosis Podcast. Join us as we talk with 3 Histio Ambassadors, Melinda Atnip, Ana Valdez and Nate Milam, about their experiences at…
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