Beyond The Diagnosis Podcast

Episode 012 – Rare Disease Day 2022

January 26, 2022

In this episode of the Beyond the Diagnosis Podcast, Kathy talks with Debbie Drell, the Director of Membership for the National Office for Rare Disorders or NORD. Learn about Rare…

Episode 011 – A Look Into the North American Consortium for Histiocytosis

December 21, 2021

In Episode 011 of the Beyond the Diagnosis Podcast, Kathy sits down with Sara Clyburn, Project Coordinator for NACHO, the North American Consortium for Histiocytosis for a conversation about what…

Episode 010 – A Year End Update from the Histiocytosis Association with Executive Director, Deanna Fournier

November 23, 2021

In Episode 010 of the Beyond the Diagnosis Podcast, Kathy welcomes back Deanna Fournier, Executive Director of the Histiocytosis Association for a conversation about what the Association has accomplished this…

Episode 009 – Emotional Wellness Month and the Benefits of Yoga w/ Special Guest, Becka Florczyk from Becka Flo Yoga

October 26, 2021

In Episode 009 of the Beyond the Diagnosis Podcast, Kathy talks with Becka Florczyk of Becka Flo Yoga about Emotional Wellness Month and some things we can do to improve…

Episode 008 – The Ins and Outs of Clinical Trials and Our Research Grant Program – w/ Special Guest, Melissa Hines from St. Jude Children’s Research Hospital

September 22, 2021

In Episode 008 of the Beyond the Diagnosis Podcast, Kathy has a very interesting conversation with Dr. Melissa Hines from St. Jude Children’s Research Hospital about how clinical trials work…

Episode 007 – Why Raising Awareness is Critical and the Impact it Can Have

August 24, 2021

In Episode 007 of the Beyond the Diagnosis Podcast, Kathy sits down with 4 very special guests for a panel discussion about the importance of raising awareness, what 3 different…

Episode 006 – LCH to Bullying, How One Patient is Using Her Experiences to Make a Difference

July 27, 2021

In Episode 006 of the Beyond the Diagnosis Podcast, Kathy sits down with histio patient, Carol Fragoso, as she shares her inspiring story of accepting and overcoming the obstacles that…

Episode 005 – Managing Stress in Difficult Times

June 22, 2021

In this episode Kathy puts her knowledge as a health coach to use as she talks about the affects that stress can have on the body and gives practical tips…

Episode 004 – EveryLife Foundation, the STAT Act, and Rare Disease Week

May 17, 2021

In this episode Kathy talks with Jamie Sullivan and Shannon von Felden from the EveryLife Foundation about the STAT Act, the upcoming Rare Disease Week and the impact that both…

Episode 003 – The Histiocyte Society – Hope for the Future

April 21, 2021

An interview with the President of the HS to learn about the work that they’re doing and the vision for the future.