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Ep 70 – Navigating Social Security & Disability Benefits for Children: Compassionate Allowance Expansion for Histiocytosis.
In this episode, Deanna Fournier guest hosts and interviews Sandra Lamb and Jane Johnson, two experienced disability representatives, about navigating the Social Security Administration (SSA) for individuals with histiocytic disorders. Part 2 of a 2-part series, this episode focuses specifically on children with questions directly from our histio community. They explain the eligibility criteria for applying for Social Security benefits, the role of disability representatives, and the importance of maintaining records. They also address the process of appealing denials and provide contact information for those seeking assistance.