In this episode of the Beyond the Diagnosis Podcast, Kathy talks with Debbie Drell, the Director of Membership for the National Office for Rare Disorders or NORD. Learn about Rare Disease Day 2022, how its impacted the rare disease world over the years and how you can get involved in Rare Disease Day this year.
- Beyond the Diagnosis – Episode 56 – Standing Up to ECD with Courage and Hope w/ Barry Atnip
- Episode 55 -Advocacy and Awareness 2 Pillars of Finding a Cure
- Episode 53 – Surviving and Thriving – Going Truly Beyond the Diagnosis w/ Dr. Gaurav Goyal
- Episode 048 – Cultivating the Seeds of Research: Understanding the Scoring Process w/ Caroline Hutter