Raise Awareness

How WE Raise Awareness

Histiocytosis Awareness Month

September is Histiocytosis Awareness Month. We initiated and continue to celebrate Histiocytosis Awareness Month in September for many reasons: to shine the light on histiocytic disorders, to foster hope in the Histio Community, and to engage and inspire people to get involved with the Histiocytosis Association. It’s also a great time to create amazing fundraising opportunities to support our many programs. 

The overall theme for Histiocytosis Awareness Month is I Know Histio.  

For questions or more information about Histio Awareness Month activities, contact our Outreach team at outreach@histio.org. 

Raise Disease Day

Rare Disease Day is observed globally on the last day of February (the rarest date on the calendar) to underscore the nature of rare diseases and what patients face. It’s an opportunity to call upon researchers, universities, students, companies, policymakers, and clinicians to do more research and to make them aware of the importance of research for the rare disease community.

You can find out more about Rare Disease Day at www.rarediseaseday.org.

Community & Fundraising Events and Medical Conferences

We strive to have a presence at various local, national, and international events and conferences to help raise awareness in communities around the world. This includes local radio station shows, community fairs, races, fundraising events, information sessions, and medical conferences such as the Annual Meeting of the Histiocyte Society, the American Society of Pediatric Hematology/Oncology (ASPHO) Conference, and hospital-sponsored seminars.

How YOU Can Raise Awareness

Take Action

The Histiocytosis Association is indeed a rare community of patients, families, friends and physicians bound by the collective fight against histiocytic disorders. The success of the Association is a direct result of the collaborative nature of this community and the desire and willingness of everyone to get involved in their own way.  

Join the Histiocytosis Association in bringing help and hope to patients and families effected by histiocytic disorders.

There are many ways can get involved in spreading awareness and champion our vital mission to provide support to the Histio Community and advance research toward better treatments and a cure for all histiocytic disorders. 

Contact us at outreach@histio.org and continue reading for some great ways to get involved!

Share Your Histio Story

Every day, patients and families affected by histiocytic disorders do whatever it takes to move their lives forward despite challenges they may face. 

Whether you are a Histio Warrior or have a loved one affected by a histiocytic disorder, we want to hear your story.

There are two easy ways to submit your Histio Story:  

  1. Record your Know My Histio Story
  2. Submit your written story

Need help submitting? Reach out to us at outreach@histio.org

Join or Host an Event

Participate in one of the many Awareness or Fundraising Events held throughout the United States and abroad or host your own event and we'll help support you along the way.

Awareness Materials: Printed materials, including disease-specific brochures can be obtained by contacting outreach@histio.org or order a full Awareness Kit in the Histio eStore. 

Wear your Histio Awareness on your sleeve! Or your back! Or your head! You can purchase exclusive Histio merchandise by visiting our online store. 

Fundraising Events: Connect with us to host an event or learn more about our annually occurring events on our Fundraising Events page. You can also email events@histio.org or call/txt our dedicated events line at +1 (856) 502-1440.

Other Ways to Get Involved

There are so many ways to get involved, raise awareness, and support research for better treatments and a cure! We encourage you to "think outside the box" and get creative!

One way to raise awareness that is often overlooked is to share resources with medical professionals to help advance knowledge and recognition of histiocytic disorders across multiple medical specialties. The Histiocytosis Association has educational resources available that you can share with your medical team. Email us at outreach@histio.org or give us a call for more information