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Fighting for a Cure

Dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

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Newly Diagnosed?

The Histiocytosis Association understands that patients and families fighting histiocytic disorders have complex needs. The Association is here to inform, empower and connect the members of this rare community - sharing knowledge and resources that will maek the journey a little easier.

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Physician Finder

Find a histio specialist in your area. Over 350 doctors in 50+ countries.

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Get the Support You Need

Histio Peer to Peer Chats provide a forum for patients and caregivers to connect as a community. We life one another up, offer support and compassion, and share our histio stories.

What We Do

The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.

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Fund Research

$7 million in total research funded that is resulting in fewer patient fatalities and more effective treatments.

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Provide Information & Resources

to 19,500+ physicians, patients, families and friends since the organization began in 1986.

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Community Outreach

We connect patients and families through meetings and events, and connect physicians through the Histiocyte Society.

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Support Clinical Trials

We promote new and emerging treatments through the funding of clinical trials and studies.

"I naturally gravitated to the literature and sought out resources, including the Histiocytosis Association in order to learn more about why LCH occurs, who is impacted, what are the protocols for treating various systems (e.g. bones, GI, skin). In my search for knowledge, I learned that LCH is still not well understood and often cast aside as a "non-cancer" despite being labeled as a histiocytic neoplasm by the National Comprehensive Cancer Network and blood cancer by the World Health Organization."

- Andrea, a Histio Mom & Ambassador

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Explore Our Resources

We strive to ensure you have all of the information and support you need, at every step of the way. Explore these resources, or contact us directly at info@histio.org or 856-589-6606 for help with any questions you may have.

Histio Warriors

Our Impact

$M
in research grants that are resulting in fewer patient fatalities and more effective treatments.
physicians, patients, and families have relied on our resources and information since 1986.
Physicians and researchers gather to share knowledge through the Histiocyte Society.
Physicians are a part of our directory that provides patients access to experienced clinicians, which can result in better outcomes.

Help These Numbers Grow

We cannot make an impact without the help of our Histio Community members like you!

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