Job and Volunteer Opportunities

Join Our Team!

Are you someone who is passionate about making a difference in the lives of others? Do you enjoy connecting with and helping patients and families feel like they are not alone while dealing with rare diseases? We are looking for energetic and skilled individuals to join our team! Openings are listed below. Check back often for career and volunteer opportunities!

Job Opportunities

awareness booth

Job Opportunity: Grant-Funded Program Coordinator (Temporary) Part-Time

October 28, 2021

The Association is actively seeking a Temporary Part-time Program Coordinator for our Outreach Department to assist in developing an Ambassador Program in addition to supporting various projects related to outreach and events. The…

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