Welcome

Welcome to the Histio Community!

The Histiocytosis Association team knows that everyone's journey with histiocytosis is different. Whenever possible, we develop and compile resources, programs, and services that are tailored to your specific diagnosis, relationship to histiocytosis, location, and point in the journey.

Please choose below, the option that best represents you, to ensure we can provide you with the best information through our emails and newsletter. When you sign up, we ask questions related to your journey to help us better understand the needs, priorities, challenges, and makeup of those impacted by histiocytosis. Please answer what you can and thank you for helping to make an impact by improving our knowledge of this rare community.

Thank you for your support and for spreading hope for histiocytosis!

Histiocytosis
Patients

Family &
Friends

Healthcare
Providers

Sign up form for individuals personally impacted by a histiocytic disorder or related condition such as Diabetes Insipidus/AVP-D.

Sign up form for those whose loved one has been impacted by a histiocytic disorder, including parents, spouses, and other friends and/or family members.

Sign up form for any healthcare providers and medical professionals, including clinicians, researchers, nurses, social workers, and industry professionals.

Why are there three (3) separate forms?
The Histiocytosis Association team recognizes that everyone's journey is unique.
We like to tailor the information we share with you based on your personal relationship to and journey with histiocytosis.
Please select the form that you feel best represents your relationship with histiocytosis.