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Erdheim-Chester disease - Google News
The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure - Washington Post

Washington Post

The ultra-rare Erdheim-Chester disease: Turning grief into a campaign for a cure
Washington Post
The cause was Erdheim-Chester disease (ECD), one of 7,000 diseases tracked by the nonprofit National Organization for Rare Disorders. The National Institutes of Health and the Food and Drug Administration call such ailments “orphan” diseases because ...


Monday, November 17, 2014 4:47:28 PM

Effective BRAF inhibitor vemurafenib therapy in a 2-year-old patient with sequentially diagnosed Langerhans cell ... - Dove Medical Press

Dove Medical Press

Effective BRAF inhibitor vemurafenib therapy in a 2-year-old patient with sequentially diagnosed Langerhans cell ...
Dove Medical Press
Abstract: Erdheim–Chester disease (ECD) is a rare histiocytic disorder, characterized by the xanthomatous infiltration of tissues by CD68-positive and CD1a-/CD100-negative foamy histiocytes. In childhood, ECD is exceptionally rare, and only a dozen ...


Tuesday, January 24, 2017 5:45:39 PM

Turkish university to set up a center for rare diseases - Hurriyet Daily News

Hurriyet Daily News

Turkish university to set up a center for rare diseases
Hurriyet Daily News
There are roughly 7 million people in Turkey suffering from rare diseases, most of whom are children, according to the university. The center aims to discover a cure for Aicardi syndrome, clawhand, Donohue syndrome, Erdheim Chester disease, Fabry ...


Thursday, November 03, 2016 7:04:57 AM

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them) - Huffington Post

Huffington Post

8 Rare 'House, MD' Cases That Can Actually Happen (And How To Avoid Them)
Huffington Post
After one of Lisa Cuddy's patients has bloody diarrhea, House has James Wilson keep Cuddy occupied at a Poker game while he tries to determine if the patient has Erdheim–Chester disease, an incredibly rare condition that was fatal a previous time he ...


Monday, November 17, 2014 11:38:27 AM

Liverpool University Press chair David Attwooll dies - The Bookseller

Liverpool University Press chair David Attwooll dies
The Bookseller
David Attwooll, poet and chair of Liverpool University Press, has died at the age of 67 after succumbing to Erdheim-Chester Disease. Attwooll was born in 1949 and began his career in publishing at Oxford University Press in 1970. By the time Attwooll ...


Wednesday, August 10, 2016 12:33:20 PM

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases - TWC News

TWC News

Staying Positive, Looking Forward in the Face of One of the World's Rarest Diseases
TWC News
VICTOR, N.Y. – Three years ago Victor resident Gurnal Jones was diagnosed with the Erdheim-Chester Disease, a very rare sickness that causes an overproduction of a type of white blood cells that can damage all of a person's organs. Gurnal's wife, Julie ...


Saturday, September 19, 2015 5:32:33 PM

NB woman calling on government to cover cost of life-saving drug - CTV News

CTV News

NB woman calling on government to cover cost of life-saving drug
CTV News
A woman who is fighting a rare form of bone cancer is calling on the New Brunswick government to cover the cost of her medication. Only about 600 cases of Erdheim-Chester Disease have been reported worldwide and Kelly Wilson says she will die without ...


Sunday, September 25, 2016 3:54:06 PM

A life-changing diagnosis - Truro Daily News

Truro Daily News

A life-changing diagnosis
Truro Daily News
“Many people go undiagnosed, or diagnosed too late, with a disease that is very aggressive and will start to attack the organs if treatment isn't started promptly.” Being new parents, having doctors tell them “it's just a fever” and to go home, wasn't ...


Sunday, September 18, 2016 3:55:33 PM

Wife fighting to save others from rare disease after husband's death - KPLC-TV

Wife fighting to save others from rare disease after husband's death
KPLC-TV
There are only 200 registered cases of Erdheim-Chester Disease in the world today. It is the disease that took the life of Gary Brewer, of DeRidder, six years ago. Even in his death, his wife is fighting for others to live. Fond memories of their years ...


Wednesday, November 13, 2013 7:13:48 AM

New Kind of Cancer Study Finds New Targets for Tailored Treatments - NBCNews.com

NBCNews.com

New Kind of Cancer Study Finds New Targets for Tailored Treatments
NBCNews.com
It's called Erdheim-Chester disease, a very rare disorder in which the immune system produces excess quantities of cells called histiocytes. These cells damage the brain, kidneys and other organs. Half of Erdheim-Chester patients have the BRAF mutation.
Memorial Sloan Kettering Cancer Center Researchers Publish Landmark “Basket Study”
BRAF May Be a Good 'Target' in Nonmelanoma Cancers
Basket Trial Finds New Tumor Types That Respond to BRAF Inhibition


Wednesday, August 19, 2015 5:23:16 PM

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