Our daughter, Amber, was diagnosed with Langerhans cell histiocytosis (LCH) when she was 9 months old. At birth, like many babies, Amber had cradle cap. Unfortunately, it did not get better. The doctors tried different creams and none of them worked. The doctors did a biopsy of one of the sites and it turned out positive for LCH. She has been in remission for the past 2 months and received her last treatment; we recently celebrated her 2nd birthday.
Being diagnosed with LCH and going through chemotherapy was something the whole family went through, not just Amber. We had the support of the awesome doctors and our loving family. What we didn't have was the support of someone who actually walked in our shoes, someone who knew and understood what we were going through.
We would like to be that support for you and are willing to share our experiences and support you on this journey.