Circle of Friends

Vienna, VA area

Host Name: 
Jennifer Bryan
Date:          Saturday, June 24, 2017
Time:              3:00 pm – 5:00 pm
Email:               
       
teamaudreyhlh@gmail.com
Host Story:   

My daughter, Audrey, was diagnosed with primary HLH (hemophagocytic lymphohistiocytosis) on November 12th, 2015, only 11 days after her first birthday. Audrey followed the 8-week HLH protocol of steroids and chemotherapy but, ultimately, it was going to be a bone marrow transplant that would save her life. We received news on Christmas Eve that they had found a PERFECT bone marrow match for Audrey so, on January 4th, we packed our bags and relocated our family to the Ronald McDonald House of Greater Cincinnati. And, on February 25th, under the direct care of Dr. Michael Jordan, Audrey received her life-saving bone marrow transplant from a complete stranger. Audrey spent 35-days inpatient at Cincinnati Children’s Hospital, she was put on protective isolation for 103 days and on June 6th, 2015, Audrey was discharged and allowed to return to our home in Vienna, Virginia. There were LOTS of bumps along the way (some of which we are still dealing with) but, now that the tough times are behind us, we can finally look forward to the future and want to help other HLH patients and their families any way we can. www.teamaudrey.org 

More Info:    

This event will be held in a private room in a public facility. Exact location will be provided upon registration. This is a non-smoking facility. Light refreshments will be served. 

Registration:

Registration is now closed.

© Histiocytosis Association, Inc.
332 North Broadway, Pitman, New Jersey  08071 USA
Phone: +1 856-589-6606 | Fax: +1 856-589-6614
| info@histio.org
Privacy | DisclaimerState Fundraising Notices 
Tax ID: 22-2827069 | Contact Us | Site Map
Follow Me on Pinterest   


¿No Habla Inglés? Si usted puede escribirme sus preguntas y preocupaciones a la dirección de correo electrónico: outreach@histio.org. Nosotros podremos responderle tan pronto nos sea possible. Gracias!