Rare Disease DayRDD Partner Badge

Rare Disease Day is February 28, 2017!

Research Brings Hope!

This year marks the 10th international Rare Disease Day! Sponsored in the United States by the National Organization for Rare Disorders (NORD) and internationally by Eurodis. This year’s theme is Research Brings Hope! Did you know?  Rare diseases are not so rare: there are 7,000 rare diseases & disorders that combined affect 30 million Americans – 1 in 10 of us – and more than half are children. Rare Disease Day is observed on the last day of February (the rarest date on the calendar) to underscore the nature of rare diseases and what patients face. It’s an opportunity to call upon researchers, universities, students, companies, policy makers and clinicians to do more research and to make them aware of the importance of research for the rare disease community.

There are numerous resources and activities available to help you raise awareness about Rare Disease Day in your local community. Learn about these resources and many more at rarediseaseday.us and rarediseaseday.org. We've highlighted a few of the activities below.


ResearchThe Histiocytosis Association Staff poses for a picture highlighting
this year's Rare Disease Day Theme, Research Brings Hope!

Rare Disease Day Event in California

Eighth Annual SBP Rare Disease Day Symposium
February 24, 2017
Sanford Children's Health Research Centre
10905 Road to the Cure
La Jolla, CA
407-745-2092 
Hosted by Sanford Burnham Prebys Medical Discovery Institute
 

Get involved!

Learn about the 7 ways to get involved!


Share your story!

Join together and show solidarity by participating in the Handprints Across America photo gallery.



Share Your Event!

Post your event to get involved in their 2017 campaign.



Worldwide Events

Learn more about the global initiatives supported through rare disease day.


Rare Disease Day 2017 Official Video

 




Rare Disease Day
 
© Histiocytosis Association, Inc.
332 North Broadway, Pitman, New Jersey  08071 USA
Phone: +1 856-589-6606 | Fax: +1 856-589-6614
| info@histio.org
Tax ID: 22-2827069 | Privacy | DisclaimerContact Us | Site Map
Follow Me on Pinterest