Clinical Trials

What is a Clinical Trial?

According to www.clinicaltrials.gov, a clinical study [trial] involves research using human volunteers (also called participants) that is intended to add to medical knowledge.

There are 2 types: observational studies and clinical trials. You can learn more about clinical trials and studies from these trusted sources:

Clinical Trials Support

Are you an HLH or LCH patient or caregiver looking for help finding a clinical trial or paying for travel arrangements to participate in one? The Be The Match Jason Carter Clinical Trials Search and Support may be able to help! They offer travel grants to help get you to clinical trials and can help you navigate the process along the way.

Learn more at www.ctsearchsupport.org.

Registries & Gene Therapies

You've learned more about clinical trials and studies, but what about Registries and Gene Therapies? Our friends at the National Organization for Rare Disorders (NORD) explain all about registries, gene therapies and more in the videos below. Find more information and videos at www.rarediseases.org.

Learn more about the registries the Histiocytosis Association supports in our Grants Awarded directory.

Click an image below to view the video on NORD's YouTube channel.