Educational Videos

Histio U Final

Educational Video Series

The Histiocytosis Association is pleased to present a collection of educational videos highlighting common questions about histiocytic disorders, their symptoms and treatment. The videos feature 13 physicians and scientists from around the world who are leaders in the field of histiocytosis.

Videos are available for online viewing below.  Learn more about the presenters by clicking on each name below.

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Overview of LCH in Children

Dr. Egeler discusses an overview of Langerhans cell histiocytosis (LCH), its symptoms, diagnosis and treatment, as well as a description of the BRAF mutation and the importance of the relationship between the Histiocytosis Association and the Histiocyte Society.

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LCH Degrees of Risk

Dr. Stine discusses the difference between the degrees of risk with LCH (low, high, and multi-system involvement). Dr. Stine also outlines what determines the length of treatment for LCH.

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CNS Involvement

Dr. McClain outlines what it means to have Central Nervous System involvement (CNS) as well as the symptoms and treatment. Dr. McClain also covers the relationship between LCH and CNS, long-term effects and what patients can expect with this diagnosis.

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Late Effects of LCH

Dr. Baker discusses the late effects/long term side effects of LCH and its treatment as well as any learning or behavioral issues that may arise.

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Overview of LCH (en Español)

¿Qué es la Histiocitosis de Célula de Langerhans (HCL) (en niños)?
¿Cuáles son los síntomas de la HCL?
¿Existe una curacón para la HCL?

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Overview of LCH in Adults

Dr. Girschikofsky discusses an overview of LCH in Adults, current treatments, and what patients can expect moving forward after diagnosis.

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Overview of Pulmonary LCH

Dr. Vassallo gives an overview of Pulmonary Langerhans cell histiocytosis (PLCH) as well as the symptoms, diagnosis, treatment and long-term effects.

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Overview of HLH

Dr. Jordan gives an overview of hemophagocytic lymphohistiocytosis (HLH), its symptoms, diagnosis and treatment.

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Overview of Rosai-Dorfman Disease

Dr. Abla gives an overview of Rosai-Dorfman disease, its symptoms, diagnosis and treatment.

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Overview of Juvenile Xanthogranuloma

Dr. Abla gives an overview of Juvenile Xanthogranuloma, its symptoms, diagnosis and treatment.

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Overview of Erdheim-Chester Disease (ECD)

Dr. Arceci gives an overview of ECD, its symptoms, diagnosis and treatment.

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Overview of Diabetes Insipidus (DI)

Dr. Whitlock gives an overview of Diabetes Insipidus, its diagnosis and treatment.

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Importance of Clinical Trials

Dr. Gross reviews the importance of clinical trials for patients as well as for the future of histiocytic research, the challenges associated with trials and how you or your physician can learn more about ongoing clinical trials.

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Scientific Research Review Process

Dr. Allen discusses the role of the Histiocyte Society Scientific Committee in the Histiocytosis Association's competitive grant application process. Dr. Allen also discusses the grading criteria and the importance of this type of funding process.