Peer to Peer Connection
No one should have to face a diagnosis of histiocytosis alone! Whether you were personally impacted as a patient, a family member, or a friend, this journey can feel isolating, scary, and uncertain. The Histio Peer to Peer Chats provide a forum for patients and caregivers to connect as a community. In these meetings we lift one another up, offer support and compassion, and share our histio stories.
The meetings are hosted online using Zoom platform. A Zoom account is not required; however, you will need to register in advance to join the call.
You are welcome to join more than one group, simply register in advance. We encourage you to come to three sessions before determining whether you’d like to continue to join long term as each session may be a slightly different experience with a different topic of focus.
When possible, multiple dates and times are offered for a group to accommodate multiple time zones and changing schedules. Based on the volume of request, those with only one available session may be expanded. Most calls will be offered bi-weekly and based on attendance, will be set up to offer breakout rooms by histiocytic disorder.
We are eager to hear your thoughts and ideas. Please share feedback with us through this feedback survey on areas you’d like to see evolve or change in the future.
*This is a new program - additional sessions/topics will be added as we grow! *
Biweekly Support Groups
We have several support groups, including for patients, caregivers, & breakout rooms by histiocytic disorder on the open calls! Join the group(s) that feel most beneficial for you.
There will not be a medical professional assisting on any of the virtual peer to peer calls. Histiocytosis impacts every patient differently and medical advice cannot be offered in these sessions. We strongly encourage all ideas shared by your peers to be discussed with your physician and/or care team. The Histiocytosis Association designed these sessions to be open, safe, and respectful environments for all who participate. We encourage you to review our Virtual Event Participant Guidelines before joining a call. If you have any questions, contact us at firstname.lastname@example.org.