Regional Meetings

Histio U Final

Regional Meetings

The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.

Our in-person regional meetings are temporarily postponed until further notice to protect the safety of all involved. We look forward to gathering together in-person again in the future! In the meantime, we have periodic virtual webinar opportunities to attend live and view on-demand in our Webinars section above.

Benefits of Participating:

  • Feel less lonely, isolated or judged
  • Gain a sense of empowerment
  • Improve your coping skills
  • Talk openly and honestly about feelings
  • Reduce distress, depression or anxiety
  • Develop a clearer understanding of what to expect with your situation
  • Get practical information about treatment options
  • Learn about better patient care
  • Improve caregiver wellness

Patient Family Conference on Histiocytic Disorders

November 10th - 11th
In Person at Shelby Farms Park in Memphis, TN
And online via a virtual platform 
We are excited to host a Conference on Histiocytic Disorders on Thursday, November 10th and Friday, November 11th in person in Memphis, Tennessee and online in a virtual capacity. The agenda will include talks that cover all histiocytic disorders, and information on clinical trials, emotional support and well-being, and transitioning from pediatric to adult care. The Histiocytosis Association is grateful to be partnering with St. Jude Children's Research Hospital and the North American Consortium for Histiocytosis (NACHO) to bring you this educational opportunity and forum to connect with other patients, families, and physicians. 
There will also be a Continued Medical Education opportunity for medical professionals on hemophagocytic syndromes, and medical professionals are welcome to attend any and all additional talks.
Registration for the event is required, and the nominal registration fee covers some of the costs associated with the speakers, venue, refreshments, and technology. More information about the full agenda, topics, additional speakers, and networking opportunities will be communicated as we get closer to the event. Save your seat today - and whether we see you in person, online, or both, we are excited to learn and connect together!
This event is supported by the generosity of the following sponsors: