Regional Meetings

Histio U Final

Regional Meetings

The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.

Benefits of Participating:

  • Feel less lonely, isolated or judged
  • Gain a sense of empowerment
  • Improve your coping skills
  • Talk openly and honestly about feelings
  • Reduce distress, depression or anxiety
  • Develop a clearer understanding of what to expect with your situation
  • Get practical information about treatment options
  • Learn about better patient care
  • Improve caregiver wellness

Patient Family Conference on Histiocytic Disorders

Upcoming Events

2023 Patient Family Conference on Histiocytic Disorders
New York City, New York
September 23rd from 9am-3pm EST

The Histiocytosis Association is grateful to be partnering with Memorial Sloan Kettering Cancer Center to host this educational opportunity and forum to connect with patients, families, and physicians. We will host speakers on each of the histiocytic disorders (Langerhans cell histiocytosis, hemophagocytic syndromes, Erdheim-Chester Disease, Rosai Dorfman Disease, and xanthogranuloma), will host interactive talks on emotional and mental wellbeing, and a session on clinical trial/registry opportunities for histiocytosis.

Come for the conference, stay for the run! This year, we are thrilled to offer an engaging way for you to connect with the histio community - the Histiocytosis Association has started a NYC Team for our Blue Ribbon Run! Hosted on September 24th in New York City, we will take steps together for a cure. Visit the event page to learn more about both the Conference and the Run!


Presenting Sponsor:                                     Conference Partner:


Past Meetings

2022 Patient Family Conference on Histiocytic Disorders
November 10th - 11th 
In Person at Shelby Farms Park in Memphis, TN
And online via a virtual platform 
The 2022 Conference on Histiocytic Disorders was held on Thursday, November 10th and Friday, November 11th in person in Memphis, Tennessee and online in a virtual capacity. The agenda included talks that cover all histiocytic disorders, and information on clinical trials, emotional support and well-being, and transitioning from pediatric to adult care. We also hosted a Continued Medical Education opportunity for medical professionals on hemophagocytic syndromes, and medical professionals. The Histiocytosis Association was grateful to be partnering with St. Jude Children's Research Hospital and the North American Consortium for Histiocytosis (NACHO) to host this educational opportunity and forum to connect with other patients, families, and physicians. 
This event was supported by the generosity of the following sponsors: