Regional Meetings

Histio U Final

Regional Meetings

The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.

Benefits of Participating:

  • Feel less lonely, isolated or judged
  • Gain a sense of empowerment
  • Improve your coping skills
  • Talk openly and honestly about feelings
  • Reduce distress, depression or anxiety
  • Develop a clearer understanding of what to expect with your situation
  • Get practical information about treatment options
  • Learn about better patient care
  • Improve caregiver wellness

Pitman Patient and Family Regional Meeting
Pitman, New Jersey
August 24 2024

The Histiocytosis Association is excited to be hosting a Histio Patient and Family Regional Meeting in Pitman. The meeting offers a wonderful opportunity to meet, connect, and share with other Histio community families and learn about the latest information from experts in the treatment of histiocytic disorders.

The agenda includes talks covering all histiocytic disorders, information on clinical trials and registries, emotional support, well-being, and diagnosing histiocytosis.

Open to all impacted by a histiocytic disorder. Medical professionals are welcome to attend all talks.

Speakers include: 

Dr. Scott Canna
Dr. Gaurav Goyal
Dr. Nitya Gulati 

and sessions to cover all histiocytic disorders and related topics.  

2024 Regional Meetings
Presenting Sponsor:                    Community Partner:
sobi                           

Birmingham Patient and Family Regional Meeting
Birmingham, Alabama
September 7 2024

More info coming soon

Conference Partner:

Past Meetings

Upcoming Events

Orange County Patient and Family Regional Meeting
Orange, California
June 1st 2024

The Histiocytosis Association was grateful to be partner with Children's Hospital of Orange County to bring this educational opportunity and forum to connect with other patients, families, and physicians.

The agenda included talks covering all histiocytic disorders, information on clinical trials and registries, emotional support, well-being, and diagnosing histiocytosis.
Speakers included:
Dr. Lilibeth Torno,
Dr. Melissa Hines,
Dr. Beth Martin 

This event was supported by the generosity the following organizations:

2024 Regional Meeting
Presenting Sponsor:                    Conference Partner:
sobi                             

2023 Patient Family Conference on Histiocytic Disorders
New York City, New York
September 23rd 2023

We were partnered with Memorial Sloan Kettering Cancer Center to host this educational opportunity and forum that connected patients, families, and physicians. We hosted speakers on each of the histiocytic disorders (Langerhans cell histiocytosis, hemophagocytic syndromes, Erdheim-Chester Disease, Rosai Dorfman Disease, and xanthogranuloma), and interactive talks on emotional and mental wellbeing, and a session on clinical trial/registry opportunities for histiocytosis.

This event was supported by the generosity of the following organizations:

Presenting Sponsor:                                     Conference Partner:

                   

2022 Patient Family Conference on Histiocytic Disorders
November 10th - 11th 
In Person at Shelby Farms Park in Memphis, TN
And online via a virtual platform 
The 2022 Conference on Histiocytic Disorders was held on Thursday, November 10th and Friday, November 11th in person in Memphis, Tennessee and online in a virtual capacity. The agenda included talks that cover all histiocytic disorders, and information on clinical trials, emotional support and well-being, and transitioning from pediatric to adult care. We also hosted a Continued Medical Education opportunity for medical professionals on hemophagocytic syndromes, and medical professionals. The Histiocytosis Association was grateful to be partnering with St. Jude Children's Research Hospital and the North American Consortium for Histiocytosis (NACHO) to host this educational opportunity and forum to connect with other patients, families, and physicians. 
This event was supported by the generosity of the following sponsors:
sobi