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Regional Meetings
The rarity of histiocytic disorders makes it difficult for patients and families to have the opportunity to meet and share with others who understand what they are going through. It is common for patients and families to feel alone and hopeless as they face the devastating effects of histiocytic disorders. Regional Meetings offer the opportunity to learn the latest information about histiocytic disorders through a presentation from experts and to connect with other patients and families in your region. The informal atmosphere invites the sharing of personal experiences and the offering of emotional comfort and moral support.
Benefits of Participating:
- Feel less lonely, isolated or judged
- Gain a sense of empowerment
- Improve your coping skills
- Talk openly and honestly about feelings
- Reduce distress, depression or anxiety
- Develop a clearer understanding of what to expect with your situation
- Get practical information about treatment options
- Learn about better patient care
- Improve caregiver wellness
Birmingham Patient and Family Regional Meeting
Birmingham, Alabama
September 7 2024
We are excited to host a Histio Patient and Family Regional Meeting in Birmingham, Alabama.
The agenda includes talks covering all histiocytic disorders, information on clinical trials and registries, emotional support, well-being, and diagnosing histiocytosis.
Open to all impacted by a histiocytic disorder. Medical professionals are welcome to attend all talks.
2024 Regional Meetings
Presenting Sponsor:
Conference Partner:
Past Meetings
Pitman Patient and Family Regional Meeting
Pitman, New Jersey
August 24 2024
The Histiocytosis Association hosted a Histio Patient and Family Regional Meeting in Pitman. The meeting offered a wonderful opportunity to meet, connect, and share with other Histio community families and learn about the latest information from experts in the treatment of histiocytic disorders.
The agenda included talks covering all histiocytic disorders, information on clinical trials and registries, emotional support, well-being, and diagnosing histiocytosis.
Speakers included:
Dr. Scott Canna
Dr. Gaurav Goyal
Dr. Nitya Gulati
This event was supported by the generosity the following organizations:
2024 Regional Meetings
Presenting Sponsor: Community Partner:
Orange County Patient and Family Regional Meeting
Orange, California
June 1st 2024
The Histiocytosis Association was grateful to be partner with Children's Hospital of Orange County to bring this educational opportunity and forum to connect with other patients, families, and physicians.
This event was supported by the generosity the following organizations:
2024 Regional Meeting
Presenting Sponsor: Conference Partner:
2023 Patient Family Conference on Histiocytic Disorders
New York City, New York
September 23rd 2023
We were partnered with Memorial Sloan Kettering Cancer Center to host this educational opportunity and forum that connected patients, families, and physicians. We hosted speakers on each of the histiocytic disorders (Langerhans cell histiocytosis, hemophagocytic syndromes, Erdheim-Chester Disease, Rosai Dorfman Disease, and xanthogranuloma), and interactive talks on emotional and mental wellbeing, and a session on clinical trial/registry opportunities for histiocytosis.
This event was supported by the generosity of the following organizations:
Presenting Sponsor: Conference Partner:
