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NORD Rare Caregiver Respite Program

The National Organization for Rare Disorders (NORD) Rare Caregiver Respite Program is designed for caregivers (parent, spouse, family member, or significant other) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to enable the caregiver a break from caregiving. Financial assistance will be granted up to $500 annually for those who qualify. Awards may be spread throughout the year or in a single use. Awards are granted on a first come, first served basis to eligible individuals. 

Who is eligible?

  • The caregiver must be a US citizen or permanent resident of the United States for at least 6 months with evidence of residency
  • The applicant must be willing to undergo a financial evaluation of need and fall within the Program’s financial eligibility guidelines
  • The patient for whom care is being provided must have a confirmed rare disease diagnosis

https://rarediseases.org/wp-content/uploads/2019/05/NRD-1182-RespiteCare_SS_1up_FNL_NoCrops_Fixed.pdf

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