Resource Library

Emotional Support

Stress Relief Products for Caregivers from MyCaringPlan

My Caring Plan is a website focused on caregiving that has been featured on PBS. It takes a very special person to dedicate themselves to the care of another. And yet, caregiving is often one of the most stressful jobs, in large part due to the vital importance of the…

Caregiver Resources from MyCaringPlan

My Caring Plan is a website focused on caregiving that has been featured on PBS. As a family caregiver, you may feel it is nearly impossible to take a break. This role often involves an around-the-clock commitment to your loved one, so you may feel you need to be available…

Caregiver Burnout Resources from MyCaringPlan

My Caring Plan is a website focused on caregiving that has been featured on PBS. What to do when compassion becomes too heavy? Caregiver burnout is one of the first things to look out for. Some would say that a loved one’s illness is harder on the family members than…

A Kid Again

For over 27 years, A Kid Again has brought Hope, Happiness and Healing to families that have a child with a life threatening conditions. They provide cost free, year round, fun filled events we call adventures for the entire immediate family to participate in. A Kid Again serves kids from birth…

Rare Disease Resource Guide For Caregivers

2021 rare disease resource guide for caregivers published by Global Genes.   It’s brimming with advice and resources for caregivers of patients with rare diseases.

Liam’s Lighthouse

Liam’s Lighthouse Foundation (LLF) provides educational material and awareness about Hemophagocytic lymphohistiocytosis (HLH) including Histiocytic Disorders.

Eric’s Journey Foundation

Eric’s Journey Foundation provides support and awareness for HLH and Stills Disease. Their focus is providing education and support for newly diagnosed adults.

CHANCE Association (Children Against Cancer)

CHANCE Association mission is to help Lebanese children with cancer, histiocytic and blood disorders to receive the necessary treatment and help cover expenses related to their treatment when families don’t have the financial means to do so.

Divina Foundation

The Divina Foundation was established in remembrance of Divine Angel Divina Joshi. Divina Foundation conducts various awareness programs in hospitals and provides support to families experiencing child loss.

OR Association

OR Association fights to improve the quality of life of children and adolescents diagnosed with Langerhans cell histiocytosis (LCH). They provide emotional support for the whole family through workshops, raise awareness, host congresses for physicians and researchers and fund scientific research.