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National Comprehensive Cancer Network Patient Resources
The National Comprehensive Cancer Network (NCCN) has published clinical guidelines for histiocytic neoplasms. While histiocytosis does not currently have patient guidelines, there are many great resources the NCCN provides. NCCN Guidelines for Patients, NCCN Patient Resource Card, and Questions to Ask About Cancer Care.
Emotional Response to Grief PDF
SARAH-Emotional-response-to-grief.pdf (cameliamihai.ch)
Supporting Someone Who is Grieving – Harvard Health
Ways to support someone who is grieving – Harvard Health
Art Therapy For Trauma
When Life Makes No Sense, Making Art Can Help Heal Your Heart – AWBW
A Healthy Grief Mindset
A Healthy Grief Mindset (coachingatendoflife.com)
Coaching at End of Life – Grief Coaching
Coaching at End of Life – Learn A Coach Approach to Being With the Dying and the Grieving
NORD Rare Caregiver Respite Program
The National Organization for Rare Disorders (NORD) Rare Caregiver Respite Program is designed for caregivers (parent, spouse, family member, or significant other) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to enable the caregiver a break from caregiving. Financial assistance will be granted up to $500 annually for those who qualify….
California Caregiver Resource Center
Founded in 1984, the California Caregiver Resource Centers are a network of 11 centers throughout California which serve family caregivers who are providing support for someone affected by chronic and debilitating health conditions https://www.caregivercalifornia.org/
Managing Stress: How stress affects you and ways to cope
LLS Managing Stress 2023 – PDF Download
Guidebook Supporting Diverse Caregivers
Guidebook Supporting Diverse Caregivers The National Alliance for Caregiving conducted structured interviews with professionals from patient advocacy groups and diverse family caregivers caring for someone who had been diagnosed with heart disease, blood cancer, lung cancer or lupus, conditions that are known to disproportionately affect diverse communities. With the guidance…