Resource Library

Emotional Support

Divina Foundation

The Divina Foundation was established in remembrance of Divine Angel Divina Joshi. Divina Foundation conducts various awareness programs in hospitals and provides support to families experiencing child loss.

OR Association

OR Association fights to improve the quality of life of children and adolescents diagnosed with Langerhans cell histiocytosis (LCH). They provide emotional support for the whole family through workshops, raise awareness, host congresses for physicians and researchers and fund scientific research.

Família Histiocitose

Família Histiocitose mission is to bring information and knowledge to the entire population and health sectors about histiocytosis, bringing family members, patients and doctors together in a large support community.

LHF Espoir

LHF Espoir mission is to raise awareness of familial hemophagocytic lymphohistiocytosis, advance research and improve care practices and support patients and families affected by familial HLH.

Associazione Italiana Linfoistiocitosi Emofagocitica (A.I.L.E.)

AILE supports families of children and adults diagnosed with Hemophagocytic lymphohistiocytosis (HLH) and promotes and funds scientific research in Italy.

Virginia Garcia Memorial Fund

Focuses on the needs of migrant farmworkers, both through the health center and outreach programs into the migrant camps.

US Pain Foundation

The US Pain Foundation is an organization serving people with pain through information, advocacy, and support.

United Way 2-1-1

2-1-1’s Health Care Resource Guide is intended to provide information on state, federal and privately purchased health insurance programs for Connecticut residents.

Be The Match Jason Carter Clinical Trials Search and Support

Be The Match Jason Carter Clinical Trials Search and Support helps people with blood cancers and blood disorders, including HLH, LCH and malignant histiocytosis, find and join clinical trials. They offer free one-on-one support with a clinical trial navigator, an online clinical trial search tool, educational resources, and a grant…

Histiozytose Hilfe e.V.

Histiozytose Hilfe e.V. offers support to patients and their families suffering from histiocytosis in Germany.