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Histio UK

Dedicated to promoting scientific research to uncover the causes of histiocytic diseases and ensure early diagnosis, effective treatment and a cure.

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Hemophagocytic Lymphohistiocytosis (HLH) – Info from CHOP

Information on HLH from the Children’s Hospital of Philadelphia, including disease information and patient and family resources.

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Global Genes

Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®.

First Steps

First Steps’ goal is to assure that all Indiana families with infants and toddlers experiencing developmental delays or disabilities have access to early intervention services close to home when they need them.

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Family Support Program of North Carolina

Family Support Network of North Carolina promotes and provides support for families with children who have special needs.

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ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.

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Contact a Family

This is a national registered charity in the U.K. that provides support and information to families of disabled children, as well as children with rare diseases.

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Compassionate Friends

A national nonprofit, self-help support organization that assists families toward the positive resolution of grief following the death of a child of any age.

Children’s Oncology Camping Association International

Children’s Oncology Camping Association International, C.O.C.A., is an international assembly of people providing camping programs for children with cancer.

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Child Life, Education and Creative Arts Therapy – CHOP

The goal of the Oncology Child Life, Education and Creative Arts Therapy program is to help children and families cope with the emotional stress and anxiety associated with cancer therapy and treatment.

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