Resource Library

Emotional Support

ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.

Contact a Family

This is a national registered charity in the U.K. that provides support and information to families of disabled children, as well as children with rare diseases.

Compassionate Friends

A national nonprofit, self-help support organization that assists families toward the positive resolution of grief following the death of a child of any age.

Children’s Oncology Camping Association International

Children’s Oncology Camping Association International, C.O.C.A., is an international assembly of people providing camping programs for children with cancer.

Child Life, Education and Creative Arts Therapy – CHOP

The goal of the Oncology Child Life, Education and Creative Arts Therapy program is to help children and families cope with the emotional stress and anxiety associated with cancer therapy and treatment.

Chai Lifeline

When serious illness strikes a child, the entire family is affected. Chai Lifeline’s extensive network of free programs and services is designed to help every member of the family cope during this time of crisis.

United for the Fight Against Histiocytosis

Facebook Group.

Bone Marrow & Cancer Foundation

The Bone Marrow & Cancer Foundation will provide you with financial assistance resources, information, programs and services about bone marrow/stem cell transplantation you need whether you are a patient, family member, friend, bone marrow donor or doctor. Some of their free services include financial assistance programs, therapy appointments, support groups,…

Temporary Assistance for Needy Families (TANF)

TANF is a program that provides cash assistance and supportive services to assist the family, helping them achieve economic self-sufficiency.

Super Sibs

Super Sibs mission is to honor, support and recognize brothers and sisters of children with cancer and their goal is to reach out to the brothers and sisters of over 12,600 children in the U.S. and Canada who are diagnosed with cancer each year.