Resource Library

Emotional Support

National Marrow Donor Program

The National Marrow Donor Program Office of Patient Advocacy is here to help. On this Web site, you can find information to help you: Talk with your doctor, choose a transplant center, answer questions about caregiving, prepare for life after transplant.

National Institutes of Health

The National Institute of Health (NIH) Outreach and Education communications offices provide information on NIH programs and activities to the public, scientific community, medical profession, and the media.

National Institute of Neurological Disorders and Stroke

The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.

National Family Caregivers Association

The National Family Caregivers Association (NFCA) educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.

National Family Caregivers Assoc. – Resources for Caregivers

NFCA offers a virtual library of information and educational materials ranging from national educational campaigns to Tips and Tools for family caregivers to information on agencies and organizations which provide caregiver support.

Me and My Marrow – Free Downloadable Children’s Book

Guides children and their families through the bone marrow donation procedure and offering suggestions on how to cope with such issues as physical changes, social interaction and family relationships.

LCH Patient Association – Japan

Langerhans Cell Histiocytosis (LCH) Patients Association in Japan provides information about patients and the activities they are working on to deepen understanding and interest in LCH.

Langerhans Cel Histiocytose – Belgium

LCH Belgium works to inform and support patients and their families and supports scientific research on LCH.

Bereaved Parents of the USA

The BP/USA offers support, understanding, encouragement and hope to other bereaved parents, siblings and grandparents after the death of their children, brother, sister or grandchildren.

Beyond the Cure

The mission of Beyond the Cure is to help childhood cancer survivors integrate the cancer experience into their new life as survivors and successfully handle the challenges that are ahead of them and to celebrate survivorship.