Resource Library

Emotional Support

National Institutes of Health

The National Institute of Health (NIH) Outreach and Education communications offices provide information on NIH programs and activities to the public, scientific community, medical profession, and the media.

National Institute of Neurological Disorders and Stroke

The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.

National Family Caregivers Association

The National Family Caregivers Association (NFCA) educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age.

National Family Caregivers Assoc. – Resources for Caregivers

NFCA offers a virtual library of information and educational materials ranging from national educational campaigns to Tips and Tools for family caregivers to information on agencies and organizations which provide caregiver support.

Me and My Marrow – Free Downloadable Children’s Book

Guides children and their families through the bone marrow donation procedure and offering suggestions on how to cope with such issues as physical changes, social interaction and family relationships.

LCH Patient Association – Japan

Langerhans Cell Histiocytosis (LCH) Patients Association in Japan provides information about patients and the activities they are working on to deepen understanding and interest in LCH.

Langerhans Cel Histiocytose – Belgium

LCH Belgium works to inform and support patients and their families and supports scientific research on LCH.

Asociacion Argentina de Histocitosis (A.A.H)

The AAH provides patients, family members and health professionals with information, connection and also works to identify alternatives to improve the quality of life for patients with histiocytic disorders in Argentina and neighboring countries in South America.

Association of Oncology Social Work

These services are designed to assist individuals, families, groups, and communities through counseling, stress and symptom management, care planning, case management, system navigation, education and advocacy.

Associazione Italiana Istiocitosi (AIRI)

AIRI brings together doctors, researchers, parents and volunteers and promotes knowledge and research histiocytosis in Italy.