Resource Library

Home & Family Support

Health Care Services – Case Management Services AK

Alaska Medicaid, through their contractor Qualis Health, provides case management services designed for patients with serious illnesses, injuries, and some chronic conditions.

Give Kids the World

Nonprofit organization that provides cost-free visits to Central Florida attractions and Give Kids the World Village.

Florida KidCare

KidCare is Florida’s children’s health insurance program for uninsured children under age 19. It is made up of four parts: MediKids, Healthy Kids, and Children’s Medical Services Network for children with special health care needs, and Medicaid for kids.

First Steps

First Steps’ goal is to assure that all Indiana families with infants and toddlers experiencing developmental delays or disabilities have access to early intervention services close to home when they need them.

Family Support Program of North Carolina

Family Support Network of North Carolina promotes and provides support for families with children who have special needs.

Family Health Plus – New York Dept. of Health

Family Health Plus provides comprehensive coverage, including prevention, primary care, hospitalization, prescriptions and other services.

ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.

Contact a Family

This is a national registered charity in the U.K. that provides support and information to families of disabled children, as well as children with rare diseases.

Connecticut State Office of Rural Health

Working together to promote the health of persons living in rural Connecticut through education, communication and partnerships.

Clinical Trials

Search all ongoing clinical trials from the NIH related to histiocytosis.