Resource Library

Insurance/Disability Assistance

Rare Disease Resource Guide For Caregivers

2021 rare disease resource guide for caregivers published by Global Genes.   It’s brimming with advice and resources for caregivers of patients with rare diseases.

US Veteran Affairs

The following has been compiled by the experience of long-time Histio Community advocates to help you navigate the care you may need and resources you may be eligible to receive. “Disability Compensation is a tax-free monetary benefit paid to Veterans with disabilities that are the result of a disease or…

USA Employee Retirement Income Security Act (ERISA)

The Employee Retirement Income Security Act of 1974 (ERISA) is a federal law that sets minimum standards for most voluntarily established retirement and health plans in private industry to provide protection for individuals in these plans. ERISA also applies to private long-term and short-term disability insurance coverage provided by the…

CHANCE Association (Children Against Cancer)

CHANCE Association mission is to help Lebanese children with cancer, histiocytic and blood disorders to receive the necessary treatment and help cover expenses related to their treatment when families don’t have the financial means to do so.

Virginia Garcia Memorial Fund

Focuses on the needs of migrant farmworkers, both through the health center and outreach programs into the migrant camps.

United Healthcare Children’s Foundation

The Children’s Foundation provides financial assistance toward the family’s share of the cost of medical services.

Be The Match Jason Carter Clinical Trials Search and Support

Be The Match Jason Carter Clinical Trials Search and Support helps people with blood cancers and blood disorders, including HLH, LCH and malignant histiocytosis, find and join clinical trials. They offer free one-on-one support with a clinical trial navigator, an online clinical trial search tool, educational resources, and a grant…

Insure Kids Now

Your state, and every state in the nation, has a health insurance program for infants, children, and teens. The insurance is available to children in working families, including families that include individuals with a variety of immigration status.

Indiana Children’s Special Health Care Services (CSHCS)

Provides supplemental medical coverage to help families of children who have serious, chronic medical conditions.

Hoosier Healthwise

Hoosier Healthwise is a health insurance program for Indiana children, pregnant women, and low-income families. Health care is provided at little or no cost to Indiana families enrolled in the program.