The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.
Histiocytosis Nederland is the patient organization for histiocytic diseases such as LCH, HLH and FHL.
Support patients and their families affected by FHL and raise awareness on this rare disease in France.
Langerhans Cell Histiocytosis (LCH) Patients Association in Japan provides information about patients and the activities they are working on to deepen understanding and interest in LCH.
LCH Belgium works to inform and support patients and their families and supports scientific research on LCH.
The AAH provides patients, family members and health professionals with information, connection and also works to identify alternatives to improve the quality of life for patients with histiocytic disorders in Argentina and neighboring countries in South America.
Spanish Patient Association
AIRI brings together doctors, researchers, parents and volunteers and promotes knowledge and research histiocytosis in Italy.
The Artemis Association supports patients and their families, fosters research on the causes of histiocytoses and keeps hospitals up to date with the latest treatments.
The Association Histiocytose offers moral support to patients and their families, develop information on histiocytosis, ensure a link with doctors and research and raise funds to support research.