Resource Library

International Histio Organization

ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.

Stichting Langerhans Cel Histiocytose

Histiocytosis Nederland is the patient organization for histiocytic diseases such as LCH, HLH and FHL.

NIH Genetic and Rare Diseases Info

Support patients and their families affected by FHL and raise awareness on this rare disease in France.

LCH Patient Association – Japan

Langerhans Cell Histiocytosis (LCH) Patients Association in Japan provides information about patients and the activities they are working on to deepen understanding and interest in LCH.

Langerhans Cel Histiocytose – Belgium

LCH Belgium works to inform and support patients and their families and supports scientific research on LCH.

Asociacion Argentina de Histocitosis (A.A.H)

The AAH provides patients, family members and health professionals with information, connection and also works to identify alternatives to improve the quality of life for patients with histiocytic disorders in Argentina and neighboring countries in South America.

Asociacion Espanola contra la Histiocitosis (ACHE)

Spanish Patient Association

Associazione Italiana Istiocitosi (AIRI)

AIRI brings together doctors, researchers, parents and volunteers and promotes knowledge and research histiocytosis in Italy.

Artemis Society for Histiocytosis – Greece

The Artemis Association supports patients and their families, fosters research on the causes of histiocytoses and keeps hospitals up to date with the latest treatments.

L’Association Histiocytose France

The Association Histiocytose offers moral support to patients and their families, develop information on histiocytosis, ensure a link with doctors and research and raise funds to support research.