Resource Library

Medical Organizations

Virginia Garcia Memorial Fund

Focuses on the needs of migrant farmworkers, both through the health center and outreach programs into the migrant camps.

Viacord – Sibling Cord Blood Transplant Program

This program provides ViaCord’s comprehensive cord blood collection, processing and five years of storage at no cost to expecting parents who have a child in need of a transplant and meet the other enrollment requirements of the program.

US Pain Foundation

The US Pain Foundation is an organization serving people with pain through information, advocacy, and support.

Immunization Action Coalition

Presents straightforward information about vaccine-preventable diseases and their vaccines. This site also has links to VISs, immunization and disease statistics, state immunization laws, state health department websites, and other topics.

Hope Lodge – American Cancer Society

Having to travel out of town for treatment is hard. Yet the American Cancer Society has a place where patients and their caregivers can find help and hope when home is far away – Hope Lodge.

Hemophagocytic Lymphohistiocytosis (HLH) – Info from CHOP

Information on HLH from the Children’s Hospital of Philadelphia, including disease information and patient and family resources.

Healthy Indiana Plan

The HIP plan covers individuals who do not live with a dependent child, and parents who earn up to approximately $44,000 annually for a family of four, have been uninsured for six months and do not have access to insurance through their employer.

Health Care Services – Case Management Services AK

Alaska Medicaid, through their contractor Qualis Health, provides case management services designed for patients with serious illnesses, injuries, and some chronic conditions.

First Steps

First Steps’ goal is to assure that all Indiana families with infants and toddlers experiencing developmental delays or disabilities have access to early intervention services close to home when they need them.

ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.