The HLH genetic panel from Machaon Diagnostics is the most comprehensive and fastest, with a STAT turnaround time of two business days. Clinical consultation is available after testing, informed by years of experience with HLH. They can also streamline the determination of trial eligibility. Founded in 2003, Machaon Diagnostics, Inc….
The Memorial Sloan Kettering Make-an-IMPACT Initiative is a rare-cancer global outreach initiative that provides free genomic profiling for patients with Langerhans Cell Histiocytosis (LCH), Erdheim-Chester Disease (ECD), Rosai-Dorfman Disease (RDD), Juvenile Xanthogranuloma (JXG), and Histiocytic Sarcoma (HS). Genomic profiling with world class, next-generation sequencing technology developed at Memorial Sloan Kettering…
Focuses on the needs of migrant farmworkers, both through the health center and outreach programs into the migrant camps.
This program provides ViaCord’s comprehensive cord blood collection, processing and five years of storage at no cost to expecting parents who have a child in need of a transplant and meet the other enrollment requirements of the program.
The US Pain Foundation is an organization serving people with pain through information, advocacy, and support.
Presents straightforward information about vaccine-preventable diseases and their vaccines. This site also has links to VISs, immunization and disease statistics, state immunization laws, state health department websites, and other topics.
Having to travel out of town for treatment is hard. Yet the American Cancer Society has a place where patients and their caregivers can find help and hope when home is far away – Hope Lodge.
Information on HLH from the Children’s Hospital of Philadelphia, including disease information and patient and family resources.
The HIP plan covers individuals who do not live with a dependent child, and parents who earn up to approximately $44,000 annually for a family of four, have been uninsured for six months and do not have access to insurance through their employer.
Alaska Medicaid, through their contractor Qualis Health, provides case management services designed for patients with serious illnesses, injuries, and some chronic conditions.