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ECD Global Alliance
The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.
Artemis Society for Histiocytosis – Greece
The Artemis Association supports patients and their families, fosters research on the causes of histiocytoses and keeps hospitals up to date with the latest treatments.