Resource Library


ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world.

Stichting Langerhans Cel Histiocytose

Histiocytosis Nederland is the patient organization for histiocytic diseases such as LCH, HLH and FHL.