Resource Library

United States

Machaon Diagnostics HLH Testing

The HLH genetic panel from Machaon Diagnostics is the most comprehensive and fastest, with a STAT turnaround time of two business days. Clinical consultation is available after testing, informed by years of experience with HLH.  They can also streamline the determination of trial eligibility. Founded in 2003, Machaon Diagnostics, Inc….

Make-an-IMPACT

The Memorial Sloan Kettering Make-an-IMPACT Initiative is a rare-cancer global outreach initiative that provides free genomic profiling for patients with Langerhans Cell Histiocytosis (LCH), Erdheim-Chester Disease (ECD), Rosai-Dorfman Disease (RDD), Juvenile Xanthogranuloma (JXG), and Histiocytic Sarcoma (HS). Genomic profiling with world class, next-generation sequencing technology developed at Memorial Sloan Kettering…

Liam’s Lighthouse

Liam’s Lighthouse Foundation (LLF) provides educational material and awareness about Hemophagocytic lymphohistiocytosis (HLH) including Histiocytic Disorders.

Eric’s Journey Foundation

Eric’s Journey Foundation provides support and awareness for HLH and Stills Disease. Their focus is providing education and support for newly diagnosed adults.

Virginia Garcia Memorial Fund

Focuses on the needs of migrant farmworkers, both through the health center and outreach programs into the migrant camps.

Viacord – Sibling Cord Blood Transplant Program

This program provides ViaCord’s comprehensive cord blood collection, processing and five years of storage at no cost to expecting parents who have a child in need of a transplant and meet the other enrollment requirements of the program.

US Pain Foundation

The US Pain Foundation is an organization serving people with pain through information, advocacy, and support.

United Way 2-1-1

2-1-1’s Health Care Resource Guide is intended to provide information on state, federal and privately purchased health insurance programs for Connecticut residents.

United Healthcare Children’s Foundation

The Children’s Foundation provides financial assistance toward the family’s share of the cost of medical services.

Kelly Anne Dolan Memorial Fund

The Kelly Anne Dolan Memorial Fund provides advocacy, education, information and financial assistance for the uninsured needs of families caring for terminally, critically and chronically ill, seriously disabled or severely injured children.