Resource Library

United States

Coaching at End of Life – Grief Coaching

Coaching at End of Life – Learn A Coach Approach to Being With the Dying and the Grieving

NORD Rare Caregiver Respite Program

The National Organization for Rare Disorders (NORD) Rare Caregiver Respite Program is designed for caregivers (parent, spouse, family member, or significant other) of a child or adult diagnosed with a rare disorder. The program provides financial assistance to enable the caregiver a break from caregiving. Financial assistance will be granted up to $500 annually for those who qualify….

Spanish-Language Brochures

Histio.org/Spanish-Language-Brochures

Pediatric Resource Guide

Supporting Diverse Family Caregivers: A Guide For Patient Advocacy Groups

NAC DiverseCaregiversGuidebook

NiceRx

NiceRx is a patient advocacy service that helps individuals access medications through Patient Assistance Programs for a set price of $49/month per medication. They work with over 200 U.S. based pharmaceutical manufacturers to offer over 1,500 FDA approved name medications. There is no limit to the number of medications you…

Cancer and Careers

As the number of cancer survivors in the U.S. continues to grow, there is an increasing need for resources and support to help them get back to everyday life and work after diagnosis and treatment. Cancer and Careers helps more than 500,000 people each year — online, in print and…

A Kid Again

For over 27 years, A Kid Again has brought Hope, Happiness and Healing to families that have a child with a life threatening conditions. They provide cost free, year round, fun filled events we call adventures for the entire immediate family to participate in. A Kid Again serves kids from birth…

Rare Disease Resource Guide For Caregivers

2021 rare disease resource guide for caregivers published by Global Genes.   It’s brimming with advice and resources for caregivers of patients with rare diseases.

US Veteran Affairs

The following has been compiled by the experience of long-time Histio Community advocates to help you navigate the care you may need and resources you may be eligible to receive. “Disability Compensation is a tax-free monetary benefit paid to Veterans with disabilities that are the result of a disease or…