Resource Library

United States

Hemophagocytic Lymphohistiocytosis (HLH) – Info from CHOP

Information on HLH from the Children’s Hospital of Philadelphia, including disease information and patient and family resources.

Heating Assistance Program (HAP) – Alaska

Apply for financial assistance for heating and utilities.

Healthy Indiana Plan

The HIP plan covers individuals who do not live with a dependent child, and parents who earn up to approximately $44,000 annually for a family of four, have been uninsured for six months and do not have access to insurance through their employer.

Health Care Services Alaska – Denali KidCare

Denali KidCare is a State of Alaska program designed to ensure that children and teens of both working and non-working families can have the health insurance they need.

Health Care Services – Case Management Services AK

Alaska Medicaid, through their contractor Qualis Health, provides case management services designed for patients with serious illnesses, injuries, and some chronic conditions.

Global Genes

Global Genes® is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon®.

Give Kids the World

Nonprofit organization that provides cost-free visits to Central Florida attractions and Give Kids the World Village.

Florida KidCare

KidCare is Florida’s children’s health insurance program for uninsured children under age 19. It is made up of four parts: MediKids, Healthy Kids, and Children’s Medical Services Network for children with special health care needs, and Medicaid for kids.

First Steps

First Steps’ goal is to assure that all Indiana families with infants and toddlers experiencing developmental delays or disabilities have access to early intervention services close to home when they need them.

Family Support Program of North Carolina

Family Support Network of North Carolina promotes and provides support for families with children who have special needs.