Resource Library

United States

Family Health Plus – New York Dept. of Health

Family Health Plus provides comprehensive coverage, including prevention, primary care, hospitalization, prescriptions and other services.

ECD Global Alliance

The ECD Global Alliance (ECDGA) is dedicated to awareness, support, education, and research related to Erdheim-Chester Disease. The organization represents patients, caregivers and medical professionals from around the world. is an award-winning federal Web site that contains disability-related resources on programs, services, laws and regulations to help people with disabilities lead full, independent lives.

Corporate Angel Network

Corporate Angel Network is a charitable organization whose sole mission is to fly cancer patients (both children and adults) to treatment at no cost to them on empty seats – on both private and corporate planes. It is open to all cancer patients, bone marrow donors and recipients, and stem…

Cord Blood Registry

As the largest, most experienced family cord blood bank, CBR has helped many families use their stem cells for lifesaving transplants and in research for other therapies.

Connecticut State Office of Rural Health

Working together to promote the health of persons living in rural Connecticut through education, communication and partnerships.

Compassionate Friends

A national nonprofit, self-help support organization that assists families toward the positive resolution of grief following the death of a child of any age.

Clinical Trials

Search all ongoing clinical trials from the NIH related to histiocytosis.

Chronic and Acute Medical Assistance (CAMA)

CAMA is a state funded program designed to help needy Alaskans who have specific illnesses get the medical care they need to manage those illnesses.

Children’s Oncology Camping Association International

Children’s Oncology Camping Association International, C.O.C.A., is an international assembly of people providing camping programs for children with cancer.